Mam tyle energii, pomysłów na to, by wykorzystać ten piękny dzień! Wszystkie jednak związane z aktywnością! 💪 Pogoda powoduje, że stópki same chodzą i chciałoby się wyjść i coś zrobić. A dystro na to - nie wolno, musisz mi dać odpocząć po wczorajszym tournee. Dobra poczytam książkę na balkonie :) 📖
#trzebaodpocząć #dystrophy #pieknydzien #odpoczynek #czytanie #czytaniejestfajne #angisteps
23 142 April 2016
Mam tyle energii, pomysłów na to, by wykorzystać ten piękny dzień! wszystkie jednak związane z aktywnością! 💪 pogoda powoduje, że stópki same chodzą i chciałoby się wyjść i coś zrobić. a dystro na to - nie wolno, musisz mi dać odpocząć po wczorajszym tournee. dobra poczytam książkę na balkonie :) 📖
#trzebaodpocząć #dystrophy #pieknydzien #odpoczynek #czytanie #czytaniejestfajne #angisteps
-What you SEE and how I FEEL-
The pain is still there when I’m smiling. The pain is still there when I don’t talk about it. When I say “I’m fine” I have a very different definition than you do.
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I am constantly in pain. Yes, constantly. Every single second. But my positive smile is my weapon against the 24/7 pain of CRPS💪🏼!!
27 121 September 2018
-what you see and how i feel-
the pain is still there when i’m smiling. the pain is still there when i don’t talk about it. when i say “i’m fine” i have a very different definition than you do.
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i am constantly in pain. yes, constantly. every single second. but my positive smile is my weapon against the 24/7 pain of crps💪🏼!!
به نقل از نیچر، یک تکنیک اصلاح ژن، بافت عضلانی چهار سگ را تا 92 درصد بازیابی کرد. این درصد به محققان این امیدواری را می‌دهد که درمان
7 121 September 2018
به نقل از نیچر، یک تکنیک اصلاح ژن، بافت عضلانی چهار سگ را تا 92 درصد بازیابی کرد. این درصد به محققان این امیدواری را می‌دهد که درمان "دیستروفی ماهیچه‌ای دوشن" (dmd) نزدیک است.
دیستروفی ماهیچه‌ای دوشن(duchenne muscular dystrophy) یا dmd شایع‌ترین و شدیدترین نوع از بیماری‌های دیستروفی ماهیچه‌ای از گونه x پیوند یافته و ژنتیکی است. از عوارض اصلی این بیماری تحلیل و نابودی ماهیچه‌های ارادی(که در کنترل بدن نقش حیاتی دارند) است که در مواقع شدید، نهایتا منجر به عدم توانایی در راه رفتن، ۹۶ درصد معلولیت، مشکلات تنفسی و مرگ می‌شود.
اکنون برای اولین بار، محققان از فناوری ویرایش ژن موسوم به کریسپر(crispr) برای جلوگیری از پیشرفت دیستروفی ماهیچه‌ای دوشن در یک پستاندار بزرگ استفاده کرده‌اند. نتایج این پژوهش اکنون هزاران کودک را در سراسر دنیا امیدوار می‌کند.
گروهی از محققان مرکز هامون "ut southwestern's for the recenerative science و medicine" یک تکنیک ژنتیکی ابداع کرده‌اند که می‌تواند راه حلی برای درمان dmd ارائه دهد.
محققان با استفاده از یک تکنیک ویرایش ژن یکپارچه برای بازیابی دیستروفی در عضله تا 92 درصد استفاده کردند. مطالعات قبلی نشان می‌دهد تنها بازیابی 15 درصدی می‌تواند به این بیماران کمک کند.
دیستروفی ماهیچه‌ای بیماری ناشی از نقص ژنتیکی است که منجر به ضعف عضلانی، کاهش تونایی حرکت و دشواری انجام کارهای روزانه می‌شود

منبع:@naslefarda97
#ژنتیک#ژنتیکی#ژنتیک_پزشکی#بیماری_نادر#ارثی
#تحلیل_عضلانی#ضعف_عضلانی #جهش_ژنتیکی #دیستروفی #دیستروفی_عضلانی #دیستروفی_ماهیچه _ای#میوپاتی #نوروپاتی #دوشن #درمان #تحقیقات #ژن_درمانی #ژن_تراپی#ویرایش_ژن #کریسپر#همیاری #همیار_باشیم #من_یک_همیار_هستم #خراسان_شمالی #بجنورد #dystrophy #myopathy#duchennemusculardystrophy
♿
#به_وقت_خرداد_نود_هفت🍀
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📍سلااااام به رُفقای جااااان، اوّل اینکه خیلی خیلی خیلی خوشحااااااالم که کنارم هستین، دوّم اینکه می‌خوام یه چیزایی بگم شاید به دردِ یکی بخوره:

قبلِ هر چیزی، یعنی قبل‌تر از اینکه من یک هَمسر باشم، یک اِنسان هستم. فکر می‌کنم همه‌ی آدما برای اینکه وظایف اجتماعی‌شونو بِ خوبی انجام بدن و مسئولیت‌پذیر باشن باید خودشونو دوست داشته باشن، برای خودشون وقت بذارن، یه وقتایی تنها باشن و از تنهایی‌شون لذّت ببرن. کارایی که بهشون اُمید و عشق میده رو انجام بدن، خُب این بسته بِ سلیقه و نوع لذّت بردن از زندگی‌شون متفاوته، ولی بنظر من اگه آدما یاد بگیرن یه وقتایی برای خودشون وقت بذارن و ارزش و احترام برای خودشون قائل بشن به هیچ وَجه از انجام کارهای روزانه‌شون خسته نمیشن و با یه برنامه‌ریزی درست از انجام کلّیه اُمور لذّت می‌برن و همیشه انرژی‌مثبت توی لحظه‌هاشون جاریه ... 🌱
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📸PHOTO: @yasamanbiglari_photographer
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#اعظم_عزیزی
#دیستروفی
#هنرمند
#مدل
#مدلینگ #تهران
#مدل_معلول_ایرانی #مدل_عکاسی
#ساز_دلتون_کوک🎼
#انرژی_مثبت✨😍
#دوستتون_دارم_زیاااااااد👈💓💓💓👉
#azamazizi
#azam_azizi
#disabled_artist
#disabled_modeling
#dystrophy
#artist
99 6,646 May 2018

#به_وقت_خرداد_نود_هفت🍀
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📍سلااااام به رُفقای جااااان، اوّل اینکه خیلی خیلی خیلی خوشحااااااالم که کنارم هستین، دوّم اینکه می‌خوام یه چیزایی بگم شاید به دردِ یکی بخوره:

قبلِ هر چیزی، یعنی قبل‌تر از اینکه من یک هَمسر باشم، یک اِنسان هستم. فکر می‌کنم همه‌ی آدما برای اینکه وظایف اجتماعی‌شونو بِ خوبی انجام بدن و مسئولیت‌پذیر باشن باید خودشونو دوست داشته باشن، برای خودشون وقت بذارن، یه وقتایی تنها باشن و از تنهایی‌شون لذّت ببرن. کارایی که بهشون اُمید و عشق میده رو انجام بدن، خُب این بسته بِ سلیقه و نوع لذّت بردن از زندگی‌شون متفاوته، ولی بنظر من اگه آدما یاد بگیرن یه وقتایی برای خودشون وقت بذارن و ارزش و احترام برای خودشون قائل بشن به هیچ وَجه از انجام کارهای روزانه‌شون خسته نمیشن و با یه برنامه‌ریزی درست از انجام کلّیه اُمور لذّت می‌برن و همیشه انرژی‌مثبت توی لحظه‌هاشون جاریه ... 🌱
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📸photo: @yasamanbiglari_photographer
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#اعظم_عزیزی #دیستروفی #هنرمند #مدل #مدلینگ #تهران #مدل_معلول_ایرانی #مدل_عکاسی #ساز_دلتون_کوک🎼
#انرژی_مثبت✨😍
#دوستتون_دارم_زیاااااااد👈💓💓💓👉
#azamazizi #azam_azizi #disabled_artist #disabled_modeling #dystrophy #artist
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✒ ممنون از سورپرایز جالب جناب آقای عمار شهیدی اَملشی... 🎨
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📍این اعظمه...
اعظم یک فعال اجتماعیه...
اعظم شاید دچار یک محدودیت فیزیکی به نام دیستروفی باشه...
اما داراری یک قلب مهربون و عزمی بزرگه!
اعظم، نقاش، نویسنده، کاشی‌کار، مُعرق و مُشبک‌کاره...
و با همه‌ی این دل مشغولی‌ها...
نماینده بچه‌های دیستروفی هم هست...
خدا بهمراهت اعظم بانو
@azam._.azizi
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📌ماشاءالله و لا حول و لا قوة الا بالله العلی العظیم

#اعظم_عزیزی#هرکی_یه_داستانی_داره#معلولیت_محدودیت_نیست#زندگی#عمار_شهیدی_املشی#فعال_اجتماعی#معرق_کار#نقاش#هنرمند#بانو#نویسنده#نماینده_بچه_های_دیستروفی#کارآفرین#azam_azizi#disabled#azamazizi#من_یک_همیار_دیستروفی_هستم#من_یک_همسر_هستم#موفقیت_اتفاقی_نیست#dystrophy#disabled_artist#disability
46 1,263 August 2016
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✒ ممنون از سورپرایز جالب جناب آقای عمار شهیدی اَملشی... 🎨
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📍این اعظمه...
اعظم یک فعال اجتماعیه...
اعظم شاید دچار یک محدودیت فیزیکی به نام دیستروفی باشه...
اما داراری یک قلب مهربون و عزمی بزرگه!
اعظم، نقاش، نویسنده، کاشی‌کار، مُعرق و مُشبک‌کاره...
و با همه‌ی این دل مشغولی‌ها...
نماینده بچه‌های دیستروفی هم هست...
خدا بهمراهت اعظم بانو
@azam._.azizi
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📌ماشاءالله و لا حول و لا قوة الا بالله العلی العظیم

#اعظم_عزیزی#هرکی_یه_داستانی_داره#معلولیت_محدودیت_نیست#زندگی#عمار_شهیدی_املشی#فعال_اجتماعی#معرق_کار#نقاش#هنرمند#بانو#نویسنده#نماینده_بچه_های_دیستروفی#کارآفرین#azam_azizi#disabled#azamazizi#من_یک_همیار_دیستروفی_هستم#من_یک_همسر_هستم#موفقیت_اتفاقی_نیست#dystrophy#disabled_artist#disability
به باد حادثه
بالم اگر شکست،چه باک؟!
خوشا پریدن 
با این شکسته بالی ها... روز جهانی معلولین مبارک

#dystrophy
#myopathy
#disability
#muscular_weakness
#sma
5 155 December 2019
به باد حادثه
بالم اگر شکست،چه باک؟!
خوشا پریدن
با این شکسته بالی ها... روز جهانی معلولین مبارک

#dystrophy #myopathy #disability #muscular_weakness #sma
💘. ST. VALENTIN.💘
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On a pas besoin de cette fête pour ce dire je t'aime, pour se faire des cadeaux ou tout autre attention 😍,mais on aime marqué le coup comme même 🤗.
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Une journée rien que tout les 2 ça nous a fait du bien, bon mise à part une sale migraine qui cest invité 😭😭
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7 ans qu'on ce supporte on a deux caractères opposé mais c'est grâce à ça qu'on avance ❤️. Encore quelques mois et puis un nouveaux projet qu'on veux depuis qu'on c'est connue ❤️❤️.
Je t'aime 💗
@lulu_diablo
@mycenterparcs
__________________________

#pregnant #fiv #endometriose #grossesse #couplegoals💑 #amour #love #barbu #selfie #sexycouple #dystrophy #faussecouche #futuremaman #futurpapa #barbus #viking #tatouage #inkedgirls #inked #coupleinlove #inkcouple #photooftheday #photography #parents #papamaman #babybump #familygoals #familylove
1 42 2 days ago
💘. st. valentin.💘
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on a pas besoin de cette fête pour ce dire je t'aime, pour se faire des cadeaux ou tout autre attention 😍,mais on aime marqué le coup comme même 🤗.
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une journée rien que tout les 2 ça nous a fait du bien, bon mise à part une sale migraine qui cest invité 😭😭
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7 ans qu'on ce supporte on a deux caractères opposé mais c'est grâce à ça qu'on avance ❤️. encore quelques mois et puis un nouveaux projet qu'on veux depuis qu'on c'est connue ❤️❤️.
je t'aime 💗
@lulu_diablo
@mycenterparcs
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#pregnant #fiv #endometriose #grossesse #couplegoals💑 #amour #love #barbu #selfie #sexycouple #dystrophy #faussecouche #futuremaman #futurpapa #barbus #viking #tatouage #inkedgirls #inked #coupleinlove #inkcouple #photooftheday #photography #parents #papamaman #babybump #familygoals #familylove
Being weird with all of this hair and please, excuse the missing muscles in this pic. It's not my fault. Btw, hii cuties‼😍😘 #dreads❤💛 #hairgains💪 #bigeyes👀 #nappychinhead😜 #cmt #charcotmarietooth #dystrophy #beyondblessed🙏 #beYOUtiful
0 4 2 days ago
Being weird with all of this hair and please, excuse the missing muscles in this pic. it's not my fault. btw, hii cuties‼😍😘 #dreads❤💛 #hairgains💪 #bigeyes👀 #nappychinhead😜 #cmt #charcotmarietooth #dystrophy #beyondblessed🙏 #beyoutiful
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#خبر_خوب
✅ سازمان غذا و داروی آمریکا (FDA) درخواست کاربرد دارویی جدید (NDA) را برای داروی ویلتولارسن (Viltolarsen) از شرکت NS Pharma به عنوان درمان بالقوه برای دیستروفی عضلانی دوشن (DMD) پذیرفت. 💬 برنامه NDA به داروهای جدید اعطا می‌شود تا پیش از تجاری سازی آن در ایالات متحده آمریکا، اثرپذیری آن قطعی شود. 💬 این شرکت که زیرمجموعه  Nippon Shinyaku ژاپن است، پیش‌بینی کرده بین ماه جولای تا سپتامبر (مرداد تا مهر ۱۳۹۹) این دارو توسط FDA تاییدیه دریافت کند. 💬 همچنین FDA چند ماه قبل به طور مشروط داروی Vyondys 53 (با نام تجاری golodirsen) از شرکت Sarepta را برای درمان دوشن پذیرفته و به آن تاییدیه داده است. 💬 داروهای ویلتولارسن و گولودیرسن که برای حداکثر ۸ درصد افراد مبتلا به دوشن قابل استفاده خواهند بود، با پوشاندن اگزون 53 در ژن دیستروفین (روش Exon Skipping)، تولید دیستروفین کاربردی را ارتقا می بخشد. اگزونها قطعات DNA هستند که پروتئین ها را کد گذاری می کند (مطابق تصویر). 💬 پیش‌تر نیز شرکت سارپتا موفق به دریافت تاییدیه برای داروی Exondys 51 (با نام تجاری Eteplisen) شده بود که با روش مشابه اگزون ۵۱ را می‌پوشاند. بنابراین در حال حاضر روش پوشش اگزون (پرش اگزون) برای حدود ۲۰ درصد از مبتلایان به دوشن آزمایشات بالینی را با موفقیت گذرانده‌اند.

ویژه‌ی کانال / منبع ۱ / منبع ۲ / ترجمه و تنظیم: میرعلایی

#تحلیل_عضلانی #نوروماسکولار #میوپاتی #دوشن#امیدواری #دیستروفی_عضلانی #دیستروفی #ژنتیک #ژنتیکی #جهش#اگزون #تازه_های_پزشکی #درمان #پیشرفت_علمی #همیاری #خراسان_شمالی #بجنورد 
#muscular #dystrophy #dmd#disability #genetics
2 57 4 days ago
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#خبر_خوب ✅ سازمان غذا و داروی آمریکا (fda) درخواست کاربرد دارویی جدید (nda) را برای داروی ویلتولارسن (viltolarsen) از شرکت ns pharma به عنوان درمان بالقوه برای دیستروفی عضلانی دوشن (dmd) پذیرفت. 💬 برنامه nda به داروهای جدید اعطا می‌شود تا پیش از تجاری سازی آن در ایالات متحده آمریکا، اثرپذیری آن قطعی شود. 💬 این شرکت که زیرمجموعه nippon shinyaku ژاپن است، پیش‌بینی کرده بین ماه جولای تا سپتامبر (مرداد تا مهر ۱۳۹۹) این دارو توسط fda تاییدیه دریافت کند. 💬 همچنین fda چند ماه قبل به طور مشروط داروی vyondys 53 (با نام تجاری golodirsen) از شرکت sarepta را برای درمان دوشن پذیرفته و به آن تاییدیه داده است. 💬 داروهای ویلتولارسن و گولودیرسن که برای حداکثر ۸ درصد افراد مبتلا به دوشن قابل استفاده خواهند بود، با پوشاندن اگزون 53 در ژن دیستروفین (روش exon skipping)، تولید دیستروفین کاربردی را ارتقا می بخشد. اگزونها قطعات dna هستند که پروتئین ها را کد گذاری می کند (مطابق تصویر). 💬 پیش‌تر نیز شرکت سارپتا موفق به دریافت تاییدیه برای داروی exondys 51 (با نام تجاری eteplisen) شده بود که با روش مشابه اگزون ۵۱ را می‌پوشاند. بنابراین در حال حاضر روش پوشش اگزون (پرش اگزون) برای حدود ۲۰ درصد از مبتلایان به دوشن آزمایشات بالینی را با موفقیت گذرانده‌اند.

ویژه‌ی کانال / منبع ۱ / منبع ۲ / ترجمه و تنظیم: میرعلایی

#تحلیل_عضلانی #نوروماسکولار #میوپاتی #دوشن#امیدواری #دیستروفی_عضلانی #دیستروفی #ژنتیک #ژنتیکی #جهش#اگزون #تازه_های_پزشکی #درمان #پیشرفت_علمی #همیاری #خراسان_شمالی #بجنورد
#muscular #dystrophy #dmd#disability #genetics
For TJ, 13–year-old from Jefferson City, MO, it’s the little things from his father that he appreciates most. He’s thankful for the friend and companion his father has always been for him, constantly supporting him as he ventures through life.⠀
--⠀
“My dad always knows how to make things better. He helps me if I get stuck, or if I’m tired he helps pick me up. There are no right words to express my thanks, you are just an awesome dad.” - TJ⠀
--⠀
#duchunne #endduchunne  #duchenneboys #cureduchenne #DMD #charity#fathersday ##duchunne #dystrophy  #endduchunne  #disorder #charity #nonprofit #donate #love #fundraising #community #volunteer #support #fundraiser #charityevent #thanksgiving #philanthropy #ngo #donations #education #DMD #duchennesmusculardystrophy #duchennedash2019 #duchennemom
1 33 4 days ago
For tj, 13–year-old from jefferson city, mo, it’s the little things from his father that he appreciates most. he’s thankful for the friend and companion his father has always been for him, constantly supporting him as he ventures through life.⠀
--⠀
“my dad always knows how to make things better. he helps me if i get stuck, or if i’m tired he helps pick me up. there are no right words to express my thanks, you are just an awesome dad.” - tj⠀
--⠀
#duchunne #endduchunne #duchenneboys #cureduchenne #dmd #charity#fathersday ##duchunne #dystrophy #endduchunne #disorder #charity #nonprofit #donate #love #fundraising #community #volunteer #support #fundraiser #charityevent #thanksgiving #philanthropy #ngo #donations #education #dmd #duchennesmusculardystrophy #duchennedash2019 #duchennemom
2,698 miles, from Hburg to Miami and back, most of those miles contained in 4 days of driving... most of those miles were really fun ones too (we all survived 🤣😂). My why(s) are contained in these pictures. Not medals, not times running a race, not any accomplishments (even though these are done for a purpose) it's all about my little family, overcoming hurdles, and taking time to enjoy each other and the act of being alive. Faith, family, determination...that's where it's at!

#musculardystrophy #family #courage #strength #faith #prayer #determination #duchenne #dystrophy #findacure #neverquit #wishesfordrew #endduchenne #duchenneawareness #duchennemusculardystrophy  #thisisduchenne #duchennelife #curedechenne #duchennehero
1 39 5 days ago
2,698 miles, from hburg to miami and back, most of those miles contained in 4 days of driving... most of those miles were really fun ones too (we all survived 🤣😂). my why(s) are contained in these pictures. not medals, not times running a race, not any accomplishments (even though these are done for a purpose) it's all about my little family, overcoming hurdles, and taking time to enjoy each other and the act of being alive. faith, family, determination...that's where it's at!

#musculardystrophy #family #courage #strength #faith #prayer #determination #duchenne #dystrophy #findacure #neverquit #wishesfordrew #endduchenne #duchenneawareness #duchennemusculardystrophy #thisisduchenne #duchennelife #curedechenne #duchennehero
Nous sommes heureux de vous annoncer que @lefrere.film de Jérémie Battaglia sera présenté en première mondiale lors des prochains Rendez-Vous @quebeccinema! ✨⁣
C'est la première fois qu'une production Extérieur Jour sera présenté au festival! ⁣
⁣
Atteint d’une maladie lui faisant perdre l’usage de son corps, Kaïs est réveillé chaque matin par un membre différent de sa famille. Le corps figé, il se rêve la nuit héros de son manga préféré avec ses frères, Fehd, le bodybuilder et Zaïd le ninja.⁣ @f3m.ca ⁣
--⁣
📽 We are pleased to announce that The Brother by Jérémie Battaglia will be presented in World Premiere during the next Rendez-Vous Québec Cinéma! ✨⁣
It's the first time for an Extérieur Jour production! ⁣
⁣
Living with an illness that is causing him to lose the use of his body, Kaïs is awoken every morning by a different member of his family. While his body is paralyzed, at night he dreams that he is the hero of his favorite manga, along with his brothers, Fehd the bodybuilder and Zaid the ninja.⁣
⁣
#lefrere #thebrother #exterieurjour #documentary #anime #film #duchenne #myopathie #dystrophy
0 9 6 days ago
Nous sommes heureux de vous annoncer que @lefrere.film de jérémie battaglia sera présenté en première mondiale lors des prochains rendez-vous @quebeccinema! ✨⁣
c'est la première fois qu'une production extérieur jour sera présenté au festival! ⁣

atteint d’une maladie lui faisant perdre l’usage de son corps, kaïs est réveillé chaque matin par un membre différent de sa famille. le corps figé, il se rêve la nuit héros de son manga préféré avec ses frères, fehd, le bodybuilder et zaïd le ninja.⁣ @f3m.ca
--⁣
📽 we are pleased to announce that the brother by jérémie battaglia will be presented in world premiere during the next rendez-vous québec cinéma! ✨⁣
it's the first time for an extérieur jour production! ⁣

living with an illness that is causing him to lose the use of his body, kaïs is awoken every morning by a different member of his family. while his body is paralyzed, at night he dreams that he is the hero of his favorite manga, along with his brothers, fehd the bodybuilder and zaid the ninja.⁣

#lefrere #thebrother #exterieurjour #documentary #anime #film #duchenne #myopathie #dystrophy
Nous sommes heureux de vous annoncer que @lefrere.film de Jérémie Battaglia sera présenté en première mondiale lors des prochains Rendez-Vous @quebeccinema! ✨⁣
C'est la première fois qu'une production Extérieur Jour sera présenté au festival! ⁣
⁣
Atteint d’une maladie lui faisant perdre l’usage de son corps, Kaïs est réveillé chaque matin par un membre différent de sa famille. Le corps figé, il se rêve la nuit héros de son manga préféré avec ses frères, Fehd, le bodybuilder et Zaïd le ninja.⁣ @f3m.ca ⁣
--⁣
📽 We are pleased to announce that The Brother by Jérémie Battaglia will be presented in World Premiere during the next Rendez-Vous Québec Cinéma! ✨⁣
It's the first time for an Extérieur Jour production! ⁣
⁣
Living with an illness that is causing him to lose the use of his body, Kaïs is awoken every morning by a different member of his family. While his body is paralyzed, at night he dreams that he is the hero of his favorite manga, along with his brothers, Fehd the bodybuilder and Zaid the ninja.⁣
⁣
#lefrere #thebrother #exterieurjour #documentary #anime #film #duchenne #myopathie #dystrophy
0 15 6 days ago
Nous sommes heureux de vous annoncer que @lefrere.film de jérémie battaglia sera présenté en première mondiale lors des prochains rendez-vous @quebeccinema! ✨⁣
c'est la première fois qu'une production extérieur jour sera présenté au festival! ⁣

atteint d’une maladie lui faisant perdre l’usage de son corps, kaïs est réveillé chaque matin par un membre différent de sa famille. le corps figé, il se rêve la nuit héros de son manga préféré avec ses frères, fehd, le bodybuilder et zaïd le ninja.⁣ @f3m.ca
--⁣
📽 we are pleased to announce that the brother by jérémie battaglia will be presented in world premiere during the next rendez-vous québec cinéma! ✨⁣
it's the first time for an extérieur jour production! ⁣

living with an illness that is causing him to lose the use of his body, kaïs is awoken every morning by a different member of his family. while his body is paralyzed, at night he dreams that he is the hero of his favorite manga, along with his brothers, fehd the bodybuilder and zaid the ninja.⁣

#lefrere #thebrother #exterieurjour #documentary #anime #film #duchenne #myopathie #dystrophy
share from: @cureduchenne's ⠀
We know that school can be difficult for boys with Duchenne - from making friends to accessibility. What tips would you share with other families about making school easier? ⠀⠀
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#CureDuchenne #LetsCureDuchenne #school #wheelchairlife #wheelchairaccessibility #duchennelife #duchennefamilies #schooltips#duchunne #endduchunne  #duchenneboys #cureduchenne #DMD #charity#duchunne #dystrophy  #endduchunne  #disorder #charity #nonprofit #donate #love #fundraising #community #volunteer #support #fundraiser #charityevent #thanksgiving #philanthropy
1 52 6 days ago
Share from: @cureduchenne's ⠀
we know that school can be difficult for boys with duchenne - from making friends to accessibility. what tips would you share with other families about making school easier? ⠀⠀
. ⠀⠀
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#cureduchenne #letscureduchenne #school #wheelchairlife #wheelchairaccessibility #duchennelife #duchennefamilies #schooltips#duchunne #endduchunne #duchenneboys #cureduchenne #dmd #charity#duchunne #dystrophy #endduchunne #disorder #charity #nonprofit #donate #love #fundraising #community #volunteer #support #fundraiser #charityevent #thanksgiving #philanthropy
MARATHON.⁣
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Distance: 42.68km / 26.52 miles ⁣
Time: 4h 34m ⁣
Temperature: 25 degrees, 73% humidity ⁣
⁣
Discomfort: ⁣
⁣
- Last 7km ⁣
⁣
Overview: ⁣
⁣
I’d never run more than 5km 3 months ago. ⁣
⁣
Several of my family members including my Mum had been diagnosed with the Myotonic gene. ⁣
⁣
I decided to dive in with both feet and do the #themiamimarathon in aid of #musculardystrophyuk #musculardystrophyscotland to raise awareness for this muscular-degenerative disease. ⁣
⁣
Over the last 3 months I have done 413km / 256 miles of training. ⁣
⁣
Yesterday, I completed my first ever #marathon in 4 hours, 34 minutes. ⁣
⁣
Overall: 1,506 / 3,077⁣
Male: 1,183 / 2,188 ⁣
30-34: 218 / 359⁣
⁣
“I’m not a runner” was always something I and many others believe in. ⁣
⁣
I guess after running the distance, I am a runner. ⁣
⁣
Everyone is, it just takes training, discipline and more importantly - mindset.⁣
⁣
I am grateful for my muscles. ⁣
⁣
There are many others less fortunate. ⁣
⁣
Thank you to everyone for their support and donations. ⁣
⁣
If you would like to make a donation, it would mean so much. Link below: ⁣
⁣
https://www.justgiving.com/fundraising/garycalder⁣
⁣
Get comfortable being uncomfortable. ⁣
⁣
#run #distance #marathonrunner #sis #fitfam #instafit #charity #musculardystrophy #dystrophy #running #fitness #fitnesstraining #2020 #vision #mindset  #garycalder_fitness #scotland #lululemon #oncloud #nike #miami #heat
6 42 1 weeks ago
Marathon.⁣


distance: 42.68km / 26.52 miles ⁣
time: 4h 34m ⁣
temperature: 25 degrees, 73% humidity ⁣

discomfort: ⁣

- last 7km ⁣

overview: ⁣

i’d never run more than 5km 3 months ago. ⁣

several of my family members including my mum had been diagnosed with the myotonic gene. ⁣

i decided to dive in with both feet and do the #themiamimarathon in aid of #musculardystrophyuk #musculardystrophyscotland to raise awareness for this muscular-degenerative disease. ⁣

over the last 3 months i have done 413km / 256 miles of training. ⁣

yesterday, i completed my first ever #marathon in 4 hours, 34 minutes. ⁣

overall: 1,506 / 3,077⁣
male: 1,183 / 2,188 ⁣
30-34: 218 / 359⁣

“i’m not a runner” was always something i and many others believe in. ⁣

i guess after running the distance, i am a runner. ⁣

everyone is, it just takes training, discipline and more importantly - mindset.⁣

i am grateful for my muscles. ⁣

there are many others less fortunate. ⁣

thank you to everyone for their support and donations. ⁣

if you would like to make a donation, it would mean so much. link below: ⁣

https://www.justgiving.com/fundraising/garycalder

get comfortable being uncomfortable. ⁣

#run #distance #marathonrunner #sis #fitfam #instafit #charity #musculardystrophy #dystrophy #running #fitness #fitnesstraining #2020 #vision #mindset #garycalder_fitness #scotland #lululemon #oncloud #nike #miami #heat
F O R W A R D
This morning I had a check-up for my diabetes. My HbA1c was quite high. As a perfectionist, this is something I normally find quite difficult. But because there are so many things going on with my health besides my diabetes, it makes sense that sometimes it's just all too much to handle for my body. Especially after I was taken to the hospital by ambulance and admitted to the hospital for a few days in December due to a serious hypo (low bloodsugar). This experience has made me a little bit more scared to have another hypo. So the high HbA1c makes sense. After a good conversation with my internist, we concluded that I just have to do everything step by step instead of wanting everything perfect all at the same time. This poem I read by @walktheearthwriter describes exactly how it is now. Explore! And climb that mountain one step at a time.
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You only need to focus on one little step forward. You don’t need to conquer the entire mountain right now. You don’t need to have everything figured out today. The only possible way to climb a mountain is by climbing it one step at a time. Don’t think about the peak, don’t worry about what may come later. Instead, focus on the one little step in front of you. The rest will come when it’s time. For now, it’a just one little step.
.

#selfexploring #selfgrowth #overcomeyourfears #stepbystep #littlesteps #motivated #focus #diabetes #diabetestype1 #type1diabetes #t1d #typeonestrong #insulinpump #showmeyourpump #hypoglycemia #hyperglycemia #hba1c #diabetesadvocate #crps #complexregionalpainsyndrome #rsd #reflexsympatheticdystrophy #dystrophy #dystonia #crpswarrior #crpsstrong #crpsfighter #crpsadvocate #crpsawareness #diabetesawareness
17 76 1 weeks ago
F o r w a r d
this morning i had a check-up for my diabetes. my hba1c was quite high. as a perfectionist, this is something i normally find quite difficult. but because there are so many things going on with my health besides my diabetes, it makes sense that sometimes it's just all too much to handle for my body. especially after i was taken to the hospital by ambulance and admitted to the hospital for a few days in december due to a serious hypo (low bloodsugar). this experience has made me a little bit more scared to have another hypo. so the high hba1c makes sense. after a good conversation with my internist, we concluded that i just have to do everything step by step instead of wanting everything perfect all at the same time. this poem i read by @walktheearthwriter describes exactly how it is now. explore! and climb that mountain one step at a time.
.
you only need to focus on one little step forward. you don’t need to conquer the entire mountain right now. you don’t need to have everything figured out today. the only possible way to climb a mountain is by climbing it one step at a time. don’t think about the peak, don’t worry about what may come later. instead, focus on the one little step in front of you. the rest will come when it’s time. for now, it’a just one little step.
.

#selfexploring #selfgrowth #overcomeyourfears #stepbystep #littlesteps #motivated #focus #diabetes #diabetestype1 #type1diabetes #t1d #typeonestrong #insulinpump #showmeyourpump #hypoglycemia #hyperglycemia #hba1c #diabetesadvocate #crps #complexregionalpainsyndrome #rsd #reflexsympatheticdystrophy #dystrophy #dystonia #crpswarrior #crpsstrong #crpsfighter #crpsadvocate #crpsawareness #diabetesawareness
share from: @cureduchenne⠀
“Some days this diagnosis gets the best of me; it makes me feel lost, sad and broken…When you avoid doing things that refill your cup, you will soon run it down to empty and no one can give from an empty cup.”- Crystal .⠀
Sometimes we forget to give time to ourselves when we are so focused on our child's life. Remember to recharge. Find time for your hobbies, drive around your city while playing your favorite music, or take a stroll around a park. Keep this commitment as you would for your child.⠀
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#duchunne #endduchunne  #duchenneboys #cureduchenne #DMD #charity#duchunne #dystrophy  #endduchunne  #disorder #charity #nonprofit #donate #love #fundraising #community #volunteer #support #fundraiser #charityevent #thanksgiving #philanthropy  #duchenneactionmonth #duchennehero #duchennehero2019 #duchennemd #duchenneandme #duchennesmusculardystrophy #duchennedash2019 #duchennemom
2 71 1 weeks ago
Share from: @cureduchenne⠀
“some days this diagnosis gets the best of me; it makes me feel lost, sad and broken…when you avoid doing things that refill your cup, you will soon run it down to empty and no one can give from an empty cup.”- crystal .⠀
sometimes we forget to give time to ourselves when we are so focused on our child's life. remember to recharge. find time for your hobbies, drive around your city while playing your favorite music, or take a stroll around a park. keep this commitment as you would for your child.⠀
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#duchunne #endduchunne #duchenneboys #cureduchenne #dmd #charity#duchunne #dystrophy #endduchunne #disorder #charity #nonprofit #donate #love #fundraising #community #volunteer #support #fundraiser #charityevent #thanksgiving #philanthropy #duchenneactionmonth #duchennehero #duchennehero2019 #duchennemd #duchenneandme #duchennesmusculardystrophy #duchennedash2019 #duchennemom
Are you planning to take your kid to the pool? It's not only super fun for them, but they can benefit from playing in the waters. Try out some exercises like gliding. Gliding helps with mobility in many directions like up, down, and sideways. Your kid can pretend to swim like a shark, frog, dolphin, or any of their favorite aquatic animals.⠀
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#duchunne #endduchunne  #duchenneboys #cureduchenne #DMD #charity ##duchunne #dystrophy  #endduchunne  #disorder #charity #nonprofit #donate #love  #community  #support #thanksgiving #philanthropy #ngo #donations #education #DMD#duchenne #duchenneawareness  #duchennemum9 #duchennemd #duchenneandme #duchennesmusculardystrophy #duchennedash2019 #duchennemom
0 46 1 weeks ago
Are you planning to take your kid to the pool? it's not only super fun for them, but they can benefit from playing in the waters. try out some exercises like gliding. gliding helps with mobility in many directions like up, down, and sideways. your kid can pretend to swim like a shark, frog, dolphin, or any of their favorite aquatic animals.⠀
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#duchunne #endduchunne #duchenneboys #cureduchenne #dmd #charity ##duchunne #dystrophy #endduchunne #disorder #charity #nonprofit #donate #love #community #support #thanksgiving #philanthropy #ngo #donations #education #dmd#duchenne #duchenneawareness #duchennemum9 #duchennemd #duchenneandme #duchennesmusculardystrophy #duchennedash2019 #duchennemom
See this little man with me, that's my best friend and amazing son Drew! He was diagnosed just under one year ago on Valentine's Day (this Valentine's Day is one year from official diagnosis, his pre-diagnosed was on February 13th) with Duchenne Muscular Dystrophy. Anyone who knows Vanessa and I know that we are determined to fight this disease through every means possible, while still making every attempt to allow him to enjoy his childhood and have fun. It's a balancing act, but for Drew who has a heart as big as his smile, there is nothing I would not do to help in whatever small way I can! It's why I make these attempts at running. I'm not great at it, but regardless of pace, I am determined to get it done. It's just one small thing I do that I hope benefits Drew, but I invite you if you are able or willing, to donate through the following link to help Drew and the four other amazing boys fighting DMD through the study with JAR:  https://www.flipcause.com/secure/fundraiser/NzE5NDQ=/41385

Or visit www.wishesfordrew.org and donate

Sharing posts, awareness, and prayers for our Drew, our family and so many other families and children affected by DMD are extremely important and so much appreciated! 
#musculardystrophy #family #courage #strength #faith #prayer #determination #duchenne #dystrophy #findacure #neverquit #wishesfordrew #endduchenne #duchenneawareness #duchennemusculardystrophy  #thisisduchenne #duchennelife #curedechenne #duchennehero
0 30 2 weeks ago
See this little man with me, that's my best friend and amazing son drew! he was diagnosed just under one year ago on valentine's day (this valentine's day is one year from official diagnosis, his pre-diagnosed was on february 13th) with duchenne muscular dystrophy. anyone who knows vanessa and i know that we are determined to fight this disease through every means possible, while still making every attempt to allow him to enjoy his childhood and have fun. it's a balancing act, but for drew who has a heart as big as his smile, there is nothing i would not do to help in whatever small way i can! it's why i make these attempts at running. i'm not great at it, but regardless of pace, i am determined to get it done. it's just one small thing i do that i hope benefits drew, but i invite you if you are able or willing, to donate through the following link to help drew and the four other amazing boys fighting dmd through the study with jar: https://www.flipcause.com/secure/fundraiser/nze5ndq=/41385

or visit www.wishesfordrew.org and donate

sharing posts, awareness, and prayers for our drew, our family and so many other families and children affected by dmd are extremely important and so much appreciated!
#musculardystrophy #family #courage #strength #faith #prayer #determination #duchenne #dystrophy #findacure #neverquit #wishesfordrew #endduchenne #duchenneawareness #duchennemusculardystrophy #thisisduchenne #duchennelife #curedechenne #duchennehero
This sweet spaniel has white lesions in both corneas - what are they and should we be concerned? This is a stromal lipid dystrophy and probably has little  effect on vision. #dog #lipid #cornea #dystrophy #veterinary #ophthalmology
0 34 2 weeks ago
This sweet spaniel has white lesions in both corneas - what are they and should we be concerned? this is a stromal lipid dystrophy and probably has little effect on vision. #dog #lipid #cornea #dystrophy #veterinary #ophthalmology
share from: @cureduchenne ⠀
“Each year, we are encouraged more and more by the outpouring of love and support the community offers up to these amazing kids and families living with Duchenne. It is our hope to continue to fight for these children’s futures. Together we will continue to fight for a cure”. - ⠀
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.#duchunne #endduchunne  #duchenneboys #cureduchenne #DMD #charity#duchunne #dystrophy  #endduchunne  #disorder #charity #nonprofit #donate #love #fundraising #community #volunteer #support #fundraiser nne #duchennedash #duchennelife #duchennemosaic #duchennesmile # duchennesucks #duchennemusculardystrophyawarene  #desafioduchenne #duchenneuk #duchennes  #duchennefamily #duchennewarenessday
0 63 2 weeks ago
Share from: @cureduchenne
“each year, we are encouraged more and more by the outpouring of love and support the community offers up to these amazing kids and families living with duchenne. it is our hope to continue to fight for these children’s futures. together we will continue to fight for a cure”. - ⠀
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.#duchunne #endduchunne #duchenneboys #cureduchenne #dmd #charity#duchunne #dystrophy #endduchunne #disorder #charity #nonprofit #donate #love #fundraising #community #volunteer #support #fundraiser nne #duchennedash #duchennelife #duchennemosaic #duchennesmile # duchennesucks #duchennemusculardystrophyawarene #desafioduchenne #duchenneuk #duchennes #duchennefamily #duchennewarenessday
A different man... #dystrophy ☘️☯️💚
Un hombre diferente... #distrofia ☘️☯️💚
0 7 2 weeks ago
A different man... #dystrophy ☘️☯️💚
un hombre diferente... #distrofia ☘️☯️💚
share from: @cureduchenne  5 years old. 3 years old. 18 months. How old was your child when they were of diagnosed? ⁠⠀⠀
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Navigating the Duchenne journey from the moment of diagnosis through various stages is difficult. Many of us know that receiving a diagnosis is the hardest thing in our life. That's why we created a new site for newly diagnosed families. We walk parents to the 1st step in understanding how to care for a child with Duchenne. Most importantly, we want to help parents have a happy and positive life regardless of Duchenne. ⁠⠀⠀
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“Receiving the diagnosis for Duchenne was the scariest time of my life and I know all about the emotions you are feeling. Equipping yourself with the knowledge you need to get the best care for your child is the best thing you can do.” - Debra, CEO⁠⠀⠀
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Let’s talk...⠀
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#duchunne #endduchunne  #duchenneboys #cureduchenne #DMD #charity#duchunne #dystrophy  #endduchunne  #disorder #charity #nonprofit #donate #love #fundraising #community #volunteer  #duchennefamily #duchennewarrior #duchennewarenessday #distrofiamusculardduchenne #duchennemum #duchenneactionmonth #duchennehero #duchennehero2019 #duchennemd #duchenneandme #duchennesmusculardystrophy #duchennedash2019 #duchennemom
5 73 2 weeks ago
Share from: @cureduchenne 5 years old. 3 years old. 18 months. how old was your child when they were of diagnosed? ⁠⠀⠀
⁠⠀⠀
navigating the duchenne journey from the moment of diagnosis through various stages is difficult. many of us know that receiving a diagnosis is the hardest thing in our life. that's why we created a new site for newly diagnosed families. we walk parents to the 1st step in understanding how to care for a child with duchenne. most importantly, we want to help parents have a happy and positive life regardless of duchenne. ⁠⠀⠀
⁠⠀⠀
“receiving the diagnosis for duchenne was the scariest time of my life and i know all about the emotions you are feeling. equipping yourself with the knowledge you need to get the best care for your child is the best thing you can do.” - debra, ceo⁠⠀⠀
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let’s talk...⠀
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#duchunne #endduchunne #duchenneboys #cureduchenne #dmd #charity#duchunne #dystrophy #endduchunne #disorder #charity #nonprofit #donate #love #fundraising #community #volunteer #duchennefamily #duchennewarrior #duchennewarenessday #distrofiamusculardduchenne #duchennemum #duchenneactionmonth #duchennehero #duchennehero2019 #duchennemd #duchenneandme #duchennesmusculardystrophy #duchennedash2019 #duchennemom
Hubby rubbed this new oil on me last night😍 
A sweet cousin/mentor blessed me with it just the other day 😌, so first time I ever tried it. I know that I have been busy but apparently the tension is going straight into my upper back😞 I could feel it yesterday when lifting up my baby girl, or just moving a certain way. Rubbing this on last night was a wonderful experience. I felt more lose + relaxed. The tension truly did decrease👏🏼 I picked up my daughter this morning and didn’t feel sore in that spot anymore. Praise the Lord! Definitely a blend you wanna have in your collection ☺️ #gymbag necessities or just stick it in your #purse! 
Use for:
👉🏼#anxiety
👉🏼#massage
👉🏼#muscle #aches + #pains
👉🏼#muscular #dystrophy
👉🏼#relaxation
👉🏼#tension 
2 drops of #aromatouch with carrier on spot that needs some extra loving✨ —AromaTouch is a blend of oils that are thoughtfully put together to help #relax, #calm and #relieve the tension of muscles to soothe irritated #tissue, and to increase #circulation. It also may help promote the #antiinflammatory effect on soft tissue and enhance all aspects of massage. •
•
•
#doterra #healthyhabits #healthylifestyle #healthyliving #aromatherapy #aroma #calming #soothing #muscle #achesandpains #muscleache #musclepain #musculardystrophy
4 12 2 weeks ago
Hubby rubbed this new oil on me last night😍
a sweet cousin/mentor blessed me with it just the other day 😌, so first time i ever tried it. i know that i have been busy but apparently the tension is going straight into my upper back😞 i could feel it yesterday when lifting up my baby girl, or just moving a certain way. rubbing this on last night was a wonderful experience. i felt more lose + relaxed. the tension truly did decrease👏🏼 i picked up my daughter this morning and didn’t feel sore in that spot anymore. praise the lord! definitely a blend you wanna have in your collection ☺️ #gymbag necessities or just stick it in your #purse!
use for:
👉🏼#anxiety 👉🏼#massage 👉🏼#muscle #aches + #pains 👉🏼#muscular #dystrophy 👉🏼#relaxation 👉🏼#tension
2 drops of #aromatouch with carrier on spot that needs some extra loving✨ —aromatouch is a blend of oils that are thoughtfully put together to help #relax, #calm and #relieve the tension of muscles to soothe irritated #tissue, and to increase #circulation. it also may help promote the #antiinflammatory effect on soft tissue and enhance all aspects of massage. •


#doterra #healthyhabits #healthylifestyle #healthyliving #aromatherapy #aroma #calming #soothing #muscle #achesandpains #muscleache #musclepain #musculardystrophy
This is all becoming so real - fertility drugs delivered this morning and feeling pretty emotional & overwhelmed. Maybe next time someone tells me “how exciting” it is that we’re starting IVF I will show them these photos.
#ivf #invitrofertilisation #tryingtoconceive #tryingtoconceivecommunity #pgdivf #ivfwithpgd #pregeneticdiagnosis #pgd #ivfpgd #tryingtohaveahealthybaby #myotonicdystrophy #myotonic #dystrophy #musculardystrophy #firstdomino #1stdomino #the1stdomino #thefirstdomino
0 0 2 weeks ago
This is all becoming so real - fertility drugs delivered this morning and feeling pretty emotional & overwhelmed. maybe next time someone tells me “how exciting” it is that we’re starting ivf i will show them these photos.
#ivf #invitrofertilisation #tryingtoconceive #tryingtoconceivecommunity #pgdivf #ivfwithpgd #pregeneticdiagnosis #pgd #ivfpgd #tryingtohaveahealthybaby #myotonicdystrophy #myotonic #dystrophy #musculardystrophy #firstdomino #1stdomino #the1stdomino #thefirstdomino
LAST LONG RUN BEFORE THE LONG RUN. ⁣
⁣
Distance: 21.92km / 13.62 miles ⁣
Time: 2h 17m 35s⁣
Temperature: 27 degrees, 66% humidity⁣
⁣
Discomfort: ⁣
⁣
- Heat⁣
- Hydration ⁣
⁣
Overview: ⁣
⁣
With around 1,000 meters / 3,280 feet above sea level, the general heat and humidity, I struggled today. ⁣
⁣
I should have loaded up more on hydration and even though I had 1 litre of coconut water throughout, it was no where near enough. 😓 ⁣
⁣
This will be my last endurance run before Sunday’s #miamimarathon ⁣
⁣
I will need moral support for sure. 😅⁣
⁣
Thank you for all your continued support and messages, it’s almost here. ⁣
⁣
Any donations for Muscular Dystrophy would be greatly appreciated, link below: ⁣
⁣
https://www.justgiving.com/fundraising/garycalder⁣
⁣
#run #distance #sis #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #fitness #fitnesstraining #2020 #vision #mindset #garycalder_fitness #scotland #lululemon #oncloud #nike #miami #colombian #heat #victoria #colombia
1 18 2 weeks ago
Last long run before the long run. ⁣

distance: 21.92km / 13.62 miles ⁣
time: 2h 17m 35s⁣
temperature: 27 degrees, 66% humidity⁣

discomfort: ⁣

- heat⁣
- hydration ⁣

overview: ⁣

with around 1,000 meters / 3,280 feet above sea level, the general heat and humidity, i struggled today. ⁣

i should have loaded up more on hydration and even though i had 1 litre of coconut water throughout, it was no where near enough. 😓 ⁣

this will be my last endurance run before sunday’s #miamimarathon

i will need moral support for sure. 😅⁣

thank you for all your continued support and messages, it’s almost here. ⁣

any donations for muscular dystrophy would be greatly appreciated, link below: ⁣

https://www.justgiving.com/fundraising/garycalder

#run #distance #sis #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #fitness #fitnesstraining #2020 #vision #mindset #garycalder_fitness #scotland #lululemon #oncloud #nike #miami #colombian #heat #victoria #colombia
We have all heard about nuclear winter but nothing about a rainy nuclear summer
.
.
.
.
#nucler #sonyalpha #sonya7ii #chernobyl  #dystrophy #umbrella #surrealism #surreal #50mm #iso200 #summer #girl 
#gasmask
25 187 2 weeks ago
We have all heard about nuclear winter but nothing about a rainy nuclear summer
.
.
.
.
#nucler #sonyalpha #sonya7ii #chernobyl #dystrophy #umbrella #surrealism #surreal #50mm #iso200 #summer #girl
#gasmask
Carrier Detection in Female Relatives of DMD/BMD Patients
Dystrofinopathies seem to affect male gender mainly, but female carriers has also been shown to be affected to varying degrees. Skeletal muscle involvement in female carriers 24% in DMD and 20% in BMD It has been reported

#dmd #bmd #duchennemusculardystrophy #duchenne #becker #muscular #dystrophy #female #detective #dogsofinstagram #surgeon #fiziktedavi #ftr #kadin
0 13 2 weeks ago
Carrier detection in female relatives of dmd/bmd patients
dystrofinopathies seem to affect male gender mainly, but female carriers has also been shown to be affected to varying degrees. skeletal muscle involvement in female carriers 24% in dmd and 20% in bmd it has been reported

#dmd #bmd #duchennemusculardystrophy #duchenne #becker #muscular #dystrophy #female #detective #dogsofinstagram #surgeon #fiziktedavi #ftr #kadin
...
‍ دیستروفی عضلانی دوشن شایع ترین و وخیم ترین نوع دیسترفی عضلانی است.این بیماری در دوران کودکی نمایان شده و با ضعف پیشرونده عضلات همراه است که منجر به ایجاد حرکات بدنی نا هماهنگ، عدم توانایی در دویدن و مشکل در برخاستن از زمین می شود.عضلات ساق پای بیمار به دلیل جایگزینی بافت فیبر و چربی بزرگ شده و بیمار روی پنجه پا راه می رود  بسیاری از این مبتلایان در سنین نوجوانی و شاید حتی قبل از آن توانایی راه رفتن را از دست داده و از ویلچر استفاده میکنند. بتدریج براثر ضعیف شدن عضلات کمر و تنه ممکن است بیمار دچار انحراف ستون مهره بصورت اسکولیوز شود. با پیشرفت بیماری بتدریج عضلات قلب و عضلات تنفسی بیمار هم ضعیف می شود.دیستروفی عضلانی بکر در واقع یک فرم خفیف دوشن است و علائم آن شبیه دوشن ولی با شدت کمتر می باشد. سرعت پیشرفت این بیماری هم از دوشن کمتر است و معمولاً در سنین سی سالگی به بالا نیاز به ویلچر پیدا میکنند.ژن این بیماری در جایگاه Xq21.2 واقع شده و شایعترین جهش ها در این ژن از نوع حذف و اضافه است. فراوانی دوشن ۱ در ۳۵۰۰ کودک پسر است. این بیماری در اثر تغییرات و نقص در ژن دیستروفین واقع در کروموزوم X ایجاد می‌شود (توارث وابسته به X). مردان مبتلا به DMD به ندرت تولید مثل می کنند.
تفاوت فنوتیپی DMD و BMD:
اگر چه هیچ تفاوت اساسی در بین این دو وجود ندارد. اما حذف در مبتلایان به DMD سبب می شود که قالب خواندن ترجمه مختل شود. اما حذف هایی که در مبتلایان به BMD وجود دارد معمولا باعث تغییر قالب خواندن نمی شود. بنابراین مبتلایان به DMD هیچ پروتئین دیستروفینی ندارند، اما در مبتلایان به BMD اینگونه نیست. به همین خاطر مبتلایان به BMD فنوتیپ خفیف تری بروز میدهند. 
یکبار که نوزادی با عارضه DMD در خانواده ای متولد شده باشد، اغلب برای بارداریهای بعدی مادر و دیگر زنانی که احتمال ناقل بودن آنها وجود دارد، مشاوره ژنتیک توصیه میشود. بطور طبیعی این امکان وجود دارد که توسط اطلاعات دقیق بدست آمده از مطالعهDNA ، وضعیت جنین تشخیص داده شود. این آزمایشات در هفته ۱۱ الی ۱۲ بارداری انجام میگردد.

#دیستروفی #دیستروفی_عضلانی #تحلیل_عضلانی #دوشن #بکر#ژنتیک #ازمایش_ژنتیک_را_جدی_بگیریم #ارثی #تشخیص_پیش_از_تولد #غربالگری#معلولیت#توانبخشی
#همیاری #همیار_باشیم #خراسان_شمالی #بجنورد #انجمن_قدم 
#dystrophy #muscular #jenetic #disabile #disability #dmd #bmd#
0 196 2 weeks ago
...
‍ دیستروفی عضلانی دوشن شایع ترین و وخیم ترین نوع دیسترفی عضلانی است.این بیماری در دوران کودکی نمایان شده و با ضعف پیشرونده عضلات همراه است که منجر به ایجاد حرکات بدنی نا هماهنگ، عدم توانایی در دویدن و مشکل در برخاستن از زمین می شود.عضلات ساق پای بیمار به دلیل جایگزینی بافت فیبر و چربی بزرگ شده و بیمار روی پنجه پا راه می رود بسیاری از این مبتلایان در سنین نوجوانی و شاید حتی قبل از آن توانایی راه رفتن را از دست داده و از ویلچر استفاده میکنند. بتدریج براثر ضعیف شدن عضلات کمر و تنه ممکن است بیمار دچار انحراف ستون مهره بصورت اسکولیوز شود. با پیشرفت بیماری بتدریج عضلات قلب و عضلات تنفسی بیمار هم ضعیف می شود.دیستروفی عضلانی بکر در واقع یک فرم خفیف دوشن است و علائم آن شبیه دوشن ولی با شدت کمتر می باشد. سرعت پیشرفت این بیماری هم از دوشن کمتر است و معمولاً در سنین سی سالگی به بالا نیاز به ویلچر پیدا میکنند.ژن این بیماری در جایگاه xq21.2 واقع شده و شایعترین جهش ها در این ژن از نوع حذف و اضافه است. فراوانی دوشن ۱ در ۳۵۰۰ کودک پسر است. این بیماری در اثر تغییرات و نقص در ژن دیستروفین واقع در کروموزوم x ایجاد می‌شود (توارث وابسته به x). مردان مبتلا به dmd به ندرت تولید مثل می کنند.
تفاوت فنوتیپی dmd و bmd:
اگر چه هیچ تفاوت اساسی در بین این دو وجود ندارد. اما حذف در مبتلایان به dmd سبب می شود که قالب خواندن ترجمه مختل شود. اما حذف هایی که در مبتلایان به bmd وجود دارد معمولا باعث تغییر قالب خواندن نمی شود. بنابراین مبتلایان به dmd هیچ پروتئین دیستروفینی ندارند، اما در مبتلایان به bmd اینگونه نیست. به همین خاطر مبتلایان به bmd فنوتیپ خفیف تری بروز میدهند.
یکبار که نوزادی با عارضه dmd در خانواده ای متولد شده باشد، اغلب برای بارداریهای بعدی مادر و دیگر زنانی که احتمال ناقل بودن آنها وجود دارد، مشاوره ژنتیک توصیه میشود. بطور طبیعی این امکان وجود دارد که توسط اطلاعات دقیق بدست آمده از مطالعهdna ، وضعیت جنین تشخیص داده شود. این آزمایشات در هفته ۱۱ الی ۱۲ بارداری انجام میگردد.

#دیستروفی #دیستروفی_عضلانی #تحلیل_عضلانی #دوشن #بکر#ژنتیک #ازمایش_ژنتیک_را_جدی_بگیریم #ارثی #تشخیص_پیش_از_تولد #غربالگری#معلولیت#توانبخشی #همیاری #همیار_باشیم #خراسان_شمالی #بجنورد #انجمن_قدم
#dystrophy #muscular #jenetic #disabile #disability #dmd #bmd#
صدفية الظفر عند طفل عمره سنتين.الورة اخدت بعد شهرين من العلاج
Résultat après deux mois de traitement d’un psoriasis de l’ongle chez un enfant de deux ans 
#ongles #onychomycosis #dystrophy #nail #dermatologie #dermatology #drasriri #casablanca🇲🇦 #marocaine🇲🇦
0 25 3 weeks ago
صدفية الظفر عند طفل عمره سنتين.الورة اخدت بعد شهرين من العلاج
résultat après deux mois de traitement d’un psoriasis de l’ongle chez un enfant de deux ans
#ongles #onychomycosis #dystrophy #nail #dermatologie #dermatology #drasriri #casablanca🇲🇦 #marocaine🇲🇦
After 5 weeks of weekly habits I now have a morning & evening routine that seems to be working for me. This habit is going to be a little different.
Habit 6: For the next 4 weeks I am going to monitor where and how I spend my money. I am lucky because I have a well paid job but that also means I’m a bit lauded faire with money. I don’t tend to buy a lot of “things” but I do splash out on experiences. As me and my partner are hoping to expand our family to include children over the next few years I think this it the perfect time for me to take stock & look at my monetary outgoings.
#moneymatters #monitoryourmoney #besmartwithmoney #save&spend #savemoney #spendmoney #habit6 #newhabit #newhabits #1stdomino #firstdomino #myotonicdystrophy #myotonic #dystrophy #musculardystrophy
0 1 3 weeks ago
After 5 weeks of weekly habits i now have a morning & evening routine that seems to be working for me. this habit is going to be a little different.
habit 6: for the next 4 weeks i am going to monitor where and how i spend my money. i am lucky because i have a well paid job but that also means i’m a bit lauded faire with money. i don’t tend to buy a lot of “things” but i do splash out on experiences. as me and my partner are hoping to expand our family to include children over the next few years i think this it the perfect time for me to take stock & look at my monetary outgoings.
#moneymatters #monitoryourmoney #besmartwithmoney #save&spend #savemoney #spendmoney #habit6 #newhabit #newhabits #1stdomino #firstdomino #myotonicdystrophy #myotonic #dystrophy #musculardystrophy
TRAINING. ⁣
⁣
Distance: 12.87km / 8 miles ⁣
Time: 1h 20m 00s⁣
Temperature: 20 degrees (82% humidity) ⁣
⁣
Discomfort: ⁣
⁣
- Hills ⁣
⁣
Overview: ⁣
⁣
Mixed terrains with plenty hills - great for conditioning. I also did a solid leg session yesterday with some chest, back and abs - 1.5 hours weight training so I can strike fast-twitch muscles. ⁣
⁣
1 week to go - amped! 🏃‍♂️ ⁣
⁣
Any donations for Muscular Dystrophy would be greatly appreciated, link below: ⁣
⁣
https://www.justgiving.com/fundraising/garycalder⁣
⁣
#run #weighttraining #legpress #sis #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #fitness #fitnesstraining #2020 #vision #mindset  #garycalder_fitness #scotland #lululemon #oncloud #nike #miami #colombian #heat #medellin #colombia
0 13 3 weeks ago
Training. ⁣

distance: 12.87km / 8 miles ⁣
time: 1h 20m 00s⁣
temperature: 20 degrees (82% humidity) ⁣

discomfort: ⁣

- hills ⁣

overview: ⁣

mixed terrains with plenty hills - great for conditioning. i also did a solid leg session yesterday with some chest, back and abs - 1.5 hours weight training so i can strike fast-twitch muscles. ⁣

1 week to go - amped! 🏃‍♂️ ⁣

any donations for muscular dystrophy would be greatly appreciated, link below: ⁣

https://www.justgiving.com/fundraising/garycalder

#run #weighttraining #legpress #sis #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #fitness #fitnesstraining #2020 #vision #mindset #garycalder_fitness #scotland #lululemon #oncloud #nike #miami #colombian #heat #medellin #colombia
#Muscular #Dystrophy #Awareness
4 70 3 weeks ago
MIAMI HEAT TO COLOMBIAN HEAT. ⁣
⁣
Distance: 29.02km / 18.03 miles⁣
Time: 2h 46m 26s⁣
Temperature: 34 degrees (60% humidity) ⁣
⁣
Discomfort: ⁣
⁣
HEAT. ⁣
⁣
Super Caliente 🥵 ⁣
⁣
Overview: ⁣
⁣
Went out 6:30am and kept it solid until around 8am then the sun was too much. ⁣
⁣
Pretty much walked the last 4 miles with a continuous hill - very uncomfortable 😣⁣
⁣
3 bottles of water with diluted #sisgels and #sis hydration tablets along with 2 other gels to keep on top of #electrolytes - never sweat anything like it...⁣
⁣
Couple more runs in this heat and 20 degrees in #miami is gonna feel like heaven 👼 ⁣
⁣
Less than 2 weeks until #themiamimarathon to raise money for #musculardystrophyuk - please follow my progress and any donations are greatly appreciated! ⁣
⁣
https://www.justgiving.com/fundraising/garycalder⁣
⁣
#run #distance #sis #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #fitness #fitnesstraining #2020 #vision #mindset  #garycalder_fitness #scotland #lululemon #oncloud #nike #miami #colombian #heat #victoria #colombia
0 15 3 weeks ago
Miami heat to colombian heat. ⁣

distance: 29.02km / 18.03 miles⁣
time: 2h 46m 26s⁣
temperature: 34 degrees (60% humidity) ⁣

discomfort: ⁣

heat. ⁣

super caliente 🥵 ⁣

overview: ⁣

went out 6:30am and kept it solid until around 8am then the sun was too much. ⁣

pretty much walked the last 4 miles with a continuous hill - very uncomfortable 😣⁣

3 bottles of water with diluted #sisgels and #sis hydration tablets along with 2 other gels to keep on top of #electrolytes - never sweat anything like it...⁣

couple more runs in this heat and 20 degrees in #miami is gonna feel like heaven 👼 ⁣

less than 2 weeks until #themiamimarathon to raise money for #musculardystrophyuk - please follow my progress and any donations are greatly appreciated! ⁣

https://www.justgiving.com/fundraising/garycalder

#run #distance #sis #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #fitness #fitnesstraining #2020 #vision #mindset #garycalder_fitness #scotland #lululemon #oncloud #nike #miami #colombian #heat #victoria #colombia
Habit 5: I’m a believer in what @gretchenrubin says, that outer order contributes to inner calm. When my floordrobe is ridiculous, I can’t always put my finger on what it is that’s wrong with me but I know it’s something. Conversely, when I have to deal with a mixed pile of clean & dirty clothes and sometimes the contents of my bedside table in a tangled heap by the side of my bed first thing in the morning, I start the day on a bad note. So my plan this week is to tidy my side of the bedroom before bed. I am a bath person so whilst the bath is running I have a short window of time which is normally all I need. Will I be able to stick to it even after a difficult day? And will outer order contribute to inner calm even if becomes the new norm? #firstdomino #1stdomino #habit5 #newhabits #newhabit #outerorderinnercalm #tidythefloordrobe #tidybeforebed #tidyyourroom #myotonicdystrophy #musculardystrophy #myotonic #dystrophy
1 5 4 weeks ago
Habit 5: i’m a believer in what @gretchenrubin says, that outer order contributes to inner calm. when my floordrobe is ridiculous, i can’t always put my finger on what it is that’s wrong with me but i know it’s something. conversely, when i have to deal with a mixed pile of clean & dirty clothes and sometimes the contents of my bedside table in a tangled heap by the side of my bed first thing in the morning, i start the day on a bad note. so my plan this week is to tidy my side of the bedroom before bed. i am a bath person so whilst the bath is running i have a short window of time which is normally all i need. will i be able to stick to it even after a difficult day? and will outer order contribute to inner calm even if becomes the new norm? #firstdomino #1stdomino #habit5 #newhabits #newhabit #outerorderinnercalm #tidythefloordrobe #tidybeforebed #tidyyourroom #myotonicdystrophy #musculardystrophy #myotonic #dystrophy
MIAMI HEAT. ⁣
⁣
Distance: 20.19km / 12.55 miles ⁣
Time: 2h 01m 46s ⁣
Temperature: 24 degrees ⁣
⁣
Discomfort: ⁣
⁣
- HEAT⁣
- Breathing ⁣
⁣
Overview: ⁣
⁣
I had run in Miami 100 times in my mind. ⁣
⁣
I visualised myself embracing the sheer heat and smiling at how I was able to tolerate it so well and I believe that’s half the battle to success. ⁣
⁣
24 degrees is essentially 4 times warmer than what I’ve been training in but looking at time vs distance, it’s actually worked out to be probably one of my best runs, even with stopping 5-6 times for 30 secs or so at a time (mainly crossing roads, waiting for traffic to pass)⁣
⁣
Before the run: ⁣
⁣
- 2 SIS hydration capsules and 2 glasses water ⁣
- Blueberry bagel⁣
- Triple shot oat milk latte⁣
⁣
During the run:⁣
⁣
- 3 SIS gels ⁣
⁣
After the run:⁣
⁣
-  2 SIS hydration capsules with 2 glasses water⁣
⁣
Recovery was great, no chaffing and no strain.⁣
⁣
Now I need to use the next 2 weeks to really acclimatise and knock out another couple big runs before the big day on 9th Feb. ⁣
⁣
Rock and Roll 😎🤘⁣
⁣
#run #distance #sis #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #fitness #fitnesstraining #2020 #vision #mindset  #garycalder_fitness #scotland #lululemon #oncloud #nike #miami #heat
0 18 4 weeks ago
Miami heat. ⁣

distance: 20.19km / 12.55 miles ⁣
time: 2h 01m 46s ⁣
temperature: 24 degrees ⁣

discomfort: ⁣

- heat⁣
- breathing ⁣

overview: ⁣

i had run in miami 100 times in my mind. ⁣

i visualised myself embracing the sheer heat and smiling at how i was able to tolerate it so well and i believe that’s half the battle to success. ⁣

24 degrees is essentially 4 times warmer than what i’ve been training in but looking at time vs distance, it’s actually worked out to be probably one of my best runs, even with stopping 5-6 times for 30 secs or so at a time (mainly crossing roads, waiting for traffic to pass)⁣

before the run: ⁣

- 2 sis hydration capsules and 2 glasses water ⁣
- blueberry bagel⁣
- triple shot oat milk latte⁣

during the run:⁣

- 3 sis gels ⁣

after the run:⁣

- 2 sis hydration capsules with 2 glasses water⁣

recovery was great, no chaffing and no strain.⁣

now i need to use the next 2 weeks to really acclimatise and knock out another couple big runs before the big day on 9th feb. ⁣

rock and roll 😎🤘⁣

#run #distance #sis #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #fitness #fitnesstraining #2020 #vision #mindset #garycalder_fitness #scotland #lululemon #oncloud #nike #miami #heat
Once a week we have a class for those with neurological impairments downstairs in our gym. Clients use either the plinths or the mats to complete their Pilates exercises and it helps keep them as active, strong and efficient as possible with their movements! .
#pilates #matworkpilates #physioledpilates #neurology #ms #dystrophy
2 18 4 weeks ago
Once a week we have a class for those with neurological impairments downstairs in our gym. clients use either the plinths or the mats to complete their pilates exercises and it helps keep them as active, strong and efficient as possible with their movements! .
#pilates #matworkpilates #physioledpilates #neurology #ms #dystrophy
بیماری دیستروفی میوتونیک به صورت اتوزومال غالب به ارث می رسد. به این معنی که فرزندان دختر یا پسر یک فرد مبتلا به احتمال 50 درصد به بیماری مبتلا می شوند.
این عارضه در اثر جهش در ژن myotonic dystrophy protein kinase (DMPK)  رخ می دهد. این  ژن که در بازوی بلند کروموزم 19 قرار دارد در عملکرد طبیعی عضلات نقش دارد.
#dystrophy #gene #laboratory #lab #genetics #ngs #next_generation_sequencing #medical
0 30 4 weeks ago
بیماری دیستروفی میوتونیک به صورت اتوزومال غالب به ارث می رسد. به این معنی که فرزندان دختر یا پسر یک فرد مبتلا به احتمال 50 درصد به بیماری مبتلا می شوند.
این عارضه در اثر جهش در ژن myotonic dystrophy protein kinase (dmpk)  رخ می دهد. این  ژن که در بازوی بلند کروموزم 19 قرار دارد در عملکرد طبیعی عضلات نقش دارد.
#dystrophy #gene #laboratory #lab #genetics #ngs #next_generation_sequencing #medical
2 57 4 weeks ago
Repost @survivingrsdwcannabis This made me Lmao 🤣 😂 So complex its named 2x #CRPS #complex#regional#pain #syndrome #RSD #Reflexative #sympathetic #Dystrophy This #rareDisease has had its name changed 40x #Forty #times😱 For fucks sake #crpsIScrap #fuckU#CRPS 🖕🏻🖕🏻#The#suicide #disease
0 9 4 weeks ago
Repost @survivingrsdwcannabis this made me l**o 🤣 😂 so complex its named 2x #crps #complex#regional#pain #syndrome #rsd #reflexative #sympathetic #dystrophy this #raredisease has had its name changed 40x #forty #times😱 for f***s sake #crpsiscrap #fucku#crps 🖕🏻🖕🏻#the#suicide #disease
0 9 4 weeks ago
"mam na imię tomek i wkrótce skończę 30 lat. choruję na zanik mięśni - dystrofia duchenne'a" cały artykuł na www.rampa.net.pl 👉 dystrofia duchenne'a i niepełnosprawność w polskim społeczeństwie. #niepełnosprawni #niepełnosprawność #zanikmięśni #dystrofia #dystrofiaduchennea #rampa #rampapokonujemybariery #dystrophy #bezbarier #motywacjadodziałania #dorosliniepelnosprawni #mójświat #myworld
Habit 4: Some days I walk loads. On others (mainly work days) I barely walk. At all. So this week I am going to walk 5,000 steps per day. I know people recommend 10,000... but on a 10 hour work day at the moment, I’m not ready. 5,000 will still be a great start #habit4 #newhabit #newhabits #habit #habits #walkthatwalk #walk5000 #walk500steps #dailywalk #walkfitness #walkfit #myotonicdystrophy #myotonic #dystrophy #musculardystrophy #firstdomino #1stdomino #thefirstdomino #the1stdomino
1 3 5 weeks ago
Habit 4: some days i walk loads. on others (mainly work days) i barely walk. at all. so this week i am going to walk 5,000 steps per day. i know people recommend 10,000... but on a 10 hour work day at the moment, i’m not ready. 5,000 will still be a great start #habit4 #newhabit #newhabits #habit #habits #walkthatwalk #walk5000 #walk500steps #dailywalk #walkfitness #walkfit #myotonicdystrophy #myotonic #dystrophy #musculardystrophy #firstdomino #1stdomino #thefirstdomino #the1stdomino
WHEN REALITY STRIKES. ⁣
⁣
Distance: 24.07km / 14.96 miles ⁣
Time: 2h 30m 53s ⁣
Temperature: 6 degrees ⁣
⁣
Discomfort: ⁣
⁣
- DOMS ⁣
- Severe Tightness ⁣
⁣
Overview: ⁣
⁣
Don’t try the following: ⁣
⁣
#thursday - deep tissue sports massage ⁣
#friday - leg session in the gym ⁣
#saturday - attempt your longest run ⁣
⁣
Doesn’t work out too well 🤦‍♂️⁣
⁣
Hamstrings were tighter than a ducks arse as well as adductors and it was just simply a miserable 2 and half hours. Still didn’t stop once but that wasn’t great. ⁣
⁣
3 #sisgels to keep me going but even that didn’t slacken the muscles off - surprising that. ⁣
⁣
I need hot and cold treatment and looking forward to my next massage Monday. ⁣
⁣
Tomorrow is 100% thy sabbath day. ⁣
⁣
#run #distance #dundee #perthroad #sis #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #fitness #fitnesstraining #outsidegym  #miami #2020 #vision #mindset  #garycalder_fitness #scotland #lululemon #oncloud #nike
1 10 5 weeks ago
When reality strikes. ⁣

distance: 24.07km / 14.96 miles ⁣
time: 2h 30m 53s ⁣
temperature: 6 degrees ⁣

discomfort: ⁣

- doms ⁣
- severe tightness ⁣

overview: ⁣

don’t try the following: ⁣

#thursday - deep tissue sports massage ⁣
#friday - leg session in the gym ⁣
#saturday - attempt your longest run ⁣

doesn’t work out too well 🤦‍♂️⁣

hamstrings were tighter than a ducks arse as well as adductors and it was just simply a miserable 2 and half hours. still didn’t stop once but that wasn’t great. ⁣

3 #sisgels to keep me going but even that didn’t slacken the muscles off - surprising that. ⁣

i need hot and cold treatment and looking forward to my next massage monday. ⁣

tomorrow is 100% thy sabbath day. ⁣

#run #distance #dundee #perthroad #sis #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #fitness #fitnesstraining #outsidegym #miami #2020 #vision #mindset #garycalder_fitness #scotland #lululemon #oncloud #nike
Dat moment dat mensen je raar aankijken omdat je in een deuk ligt door @jochemmyjer 
Ondanks de pijn 24/7, de Tens hiervoor en het constante moe zijn brengt dit voor mij een hoop vreugde en welkome afleiding van de narigheid 🙂

#chronicillness #dystrophy #levensvreugde #lachenisgezond #happy #ademinademuit
0 15 last month
Dat moment dat mensen je raar aankijken omdat je in een deuk ligt door @jochemmyjer
ondanks de pijn 24/7, de tens hiervoor en het constante moe zijn brengt dit voor mij een hoop vreugde en welkome afleiding van de narigheid 🙂

#chronicillness #dystrophy #levensvreugde #lachenisgezond #happy #ademinademuit
HILL RUN. ⁣
⁣
Distance: 6.84km / 4.25 miles ⁣
Time: 42m 58s ⁣
Temperature: 8 degrees ⁣
⁣
Discomfort: ⁣
⁣
- Breathing ⁣
- Fitness ⁣
⁣
Overview: ⁣
⁣
Managed to run to the top of #thelawhill without stopping - serious incline that doesn’t stop until the end 😅⁣
⁣
Coming down was a pleasure - what goes up, must come down - it isn’t always a bad thing. 😂⁣
⁣
This was yesterday’s run and today was rest day - had a #sportsmassage to help break down the tightness in my legs, proper painful but unbelievably beneficial. ⁣
⁣
Long run at the weekend will be on the cards, can’t wait 😄🏃‍♂️ ⁣
⁣
#run #hills #dundee #lawhill #sportstherapy #sis #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #fitness #fitnesstraining #outsidegym  #miami #2020 #vision #mindset  #garycalder_fitness #scotland #lululemon #oncloud #nike
0 15 last month
Hill run. ⁣

distance: 6.84km / 4.25 miles ⁣
time: 42m 58s ⁣
temperature: 8 degrees ⁣

discomfort: ⁣

- breathing ⁣
- fitness ⁣

overview: ⁣

managed to run to the top of #thelawhill without stopping - serious incline that doesn’t stop until the end 😅⁣

coming down was a pleasure - what goes up, must come down - it isn’t always a bad thing. 😂⁣

this was yesterday’s run and today was rest day - had a #sportsmassage to help break down the tightness in my legs, proper painful but unbelievably beneficial. ⁣

long run at the weekend will be on the cards, can’t wait 😄🏃‍♂️ ⁣

#run #hills #dundee #lawhill #sportstherapy #sis #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #fitness #fitnesstraining #outsidegym #miami #2020 #vision #mindset #garycalder_fitness #scotland #lululemon #oncloud #nike
IN BETWEEN
@bjoern_ragnar
@jenswac
@other_visions .
People are like stained glass windows. They sparkle and shine when the sun is out, but when the darkness sets in, their true beauty is revealed only if there is a light from within.' -Elizabeth Kubler Ross .
A kind of throw back - into the spring of 2017...
hank you Jens for your friendship and a lot of fun through the years! .
.
.
#fineart #digitalart #photography #portraitphotography #art #maleportrait #intoblue #betrue #instaselfie #raw #deadcityruins #oldbuildinglover #changeofview #socialmediaaddiction  #followyourownpath #believe #dystrophy #scifi #1984georgeorwell #othervisions #jenswac #bjoernragnar
2 62 last month
In between
@bjoern_ragnar
@jenswac
@other_visions .
people are like stained glass windows. they sparkle and shine when the sun is out, but when the darkness sets in, their true beauty is revealed only if there is a light from within.' -elizabeth kubler ross .
a kind of throw back - into the spring of 2017...
hank you jens for your friendship and a lot of fun through the years! .
.
.
#fineart #digitalart #photography #portraitphotography #art #maleportrait #intoblue #betrue #instaselfie #raw #deadcityruins #oldbuildinglover #changeofview #socialmediaaddiction #followyourownpath #believe #dystrophy #scifi #1984georgeorwell #othervisions #jenswac #bjoernragnar
Give nature a helping hand by sending a handmade card with a personalised booklet and seed pack. 🌻 This pack contains 4 different sunflower types , some you can even grow indoors. #gifts #nature #environment #cards #seedGifts #charity #dystrophy #sunflower #etsyseller #etsyuk
0 9 last month
Give nature a helping hand by sending a handmade card with a personalised booklet and seed pack. 🌻 this pack contains 4 different sunflower types , some you can even grow indoors. #gifts #nature #environment #cards #seedgifts #charity #dystrophy #sunflower #etsyseller #etsyuk
I love the NHS. I work for the NHS. It provides everyone in the UK with the same level of healthcare. It saves lives and improves quality of lives. It is allowing me to see world specialists in myotonic dystrophy. It is giving me & my partner the opportunity to have a baby born without my genetic condition through preimplantation genetic diagnosis IVF - to beat those rubbish 50/50 odds that we would otherwise have.

I hate the NHS. Because of a text message I received yesterday “reminding me” of my hospital appointment on the 21st January (an appointment that I had no knowledge of prior to that text message) I’m now wasting my day off feeling anxious about being granted leave at such short notice. My employers have been so supportive (good old NHS) but I’m wondering how long this can continue. That’s 5 appointments already that I have booked this year and that’s just for myotonic dystrophy not even IVF (still waiting to hear about my next appointment at the assisted conception unit)
#lovethenhs #myotonicdyatrophy #myotonic #dystrophy #musculardystrophy #chronicillness #waitingpatiently #waitingimpatiently #frustrated #exhausted #firstdomino #1stdomino #IVF #PGD #PGDIVF
1 0 last month
I love the nhs. i work for the nhs. it provides everyone in the uk with the same level of healthcare. it saves lives and improves quality of lives. it is allowing me to see world specialists in myotonic dystrophy. it is giving me & my partner the opportunity to have a baby born without my genetic condition through preimplantation genetic diagnosis ivf - to beat those rubbish 50/50 odds that we would otherwise have.

i hate the nhs. because of a text message i received yesterday “reminding me” of my hospital appointment on the 21st january (an appointment that i had no knowledge of prior to that text message) i’m now wasting my day off feeling anxious about being granted leave at such short notice. my employers have been so supportive (good old nhs) but i’m wondering how long this can continue. that’s 5 appointments already that i have booked this year and that’s just for myotonic dystrophy not even ivf (still waiting to hear about my next appointment at the assisted conception unit)
#lovethenhs #myotonicdyatrophy #myotonic #dystrophy #musculardystrophy #chronicillness #waitingpatiently #waitingimpatiently #frustrated #exhausted #firstdomino #1stdomino #ivf #pgd #pgdivf
💕. OVERDOSE DE LOVE. 💕
-
Grâce à toi j'ai fondée la famille que j'ai toujours rêvé, les projets même si tous non pas été au top sa reste des expériences que grâce à ça qu'on en est là ❤️.
-
7 ans et les projet son loin d'être fini 😍
En avant pour la suite 😍❤️
-
Je t'aime 💜 @lulu_diablo
____________________________  #endometriose #grossesse #couplegoals💑 #amour #love #barbu #selfie #sexycouple #dystrophy  #futuremaman #futurpapa #barbus #viking #tatouage #inkedgirls #inked #coupleinlove #inkcouple #photooftheday #photography #parents #papamaman #babybump #familygoals #familylove #disneylandparis #disney #disneylandparispa
10 76 last month
💕. overdose de love. 💕
-
grâce à toi j'ai fondée la famille que j'ai toujours rêvé, les projets même si tous non pas été au top sa reste des expériences que grâce à ça qu'on en est là ❤️.
-
7 ans et les projet son l**n d'être fini 😍
en avant pour la suite 😍❤️
-
je t'aime 💜 @lulu_diablo
____________________________ #endometriose #grossesse #couplegoals💑 #amour #love #barbu #selfie #sexycouple #dystrophy #futuremaman #futurpapa #barbus #viking #tatouage #inkedgirls #inked #coupleinlove #inkcouple #photooftheday #photography #parents #papamaman #babybump #familygoals #familylove #disneylandparis #disney #disneylandparispa
Habit 3: Everyone probably knows that it’s not good to have your phone by your bed. It’s not good for your phone to be the first thing you interact with in the morning and the last thing that you look at before going to sleep. If I really need to be contacted overnight those close to me have my home number. I’ve charged my phone downstairs overnight I intermittently over the last month but now I’m going to commit to keep it downstairs every night for a week. Will it help me sleep better? Will it reduce mindless scrolling at night and in the morning?
#habit #habits #habit3 #newhabit #newhabits #firstdomino #myotonicdystrophy #myotonic #dystrophy #musculardystrophy #putyourphonetobed
1 1 last month
Habit 3: everyone probably knows that it’s not good to have your phone by your bed. it’s not good for your phone to be the first thing you interact with in the morning and the last thing that you look at before going to sleep. if i really need to be contacted overnight those close to me have my home number. i’ve charged my phone downstairs overnight i intermittently over the last month but now i’m going to commit to keep it downstairs every night for a week. will it help me sleep better? will it reduce mindless scrolling at night and in the morning?
#habit #habits #habit3 #newhabit #newhabits #firstdomino #myotonicdystrophy #myotonic #dystrophy #musculardystrophy #putyourphonetobed
💫Client review 💫 
It’s a great feeling doing something I love whilst helping people at the same time☺️ _______________________________________________
📧 natasha.sportstherapist@gmail.com
📱 DM
⌨️ Facebook.com/sportsmassagebynatasha
2 12 last month
💫client review 💫
it’s a great feeling doing something i love whilst helping people at the same time☺️ _______________________________________________
📧 natasha.sportstherapist@gmail.com
📱 dm
⌨️ facebook.com/sportsmassagebynatasha
RECOVERY RUN. ⁣
⁣
Distance: 10.57km / 6.57 miles ⁣
Time: 1h 1m 47s ⁣
Temperature: 6 degrees ⁣
⁣
Discomfort: ⁣
⁣
- Tired legs ⁣
- Left ITB ⁣
⁣
Overview: ⁣
⁣
Ran out of bagels, rice cakes and coffee 😤 porridge doesn’t sit too well when running 🤢 ⁣
⁣
However, a very easy pace this morning, recovering from training this week. Still not a bad pace, 6 1/2 miles and hour - I’ll take it.⁣
⁣
Makes such a difference when the sun is out☀️😎 even though it’s still so cold 🥶 ⁣
⁣
#run #distance #dundee #10k #perthroad #sis #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #fitness #fitnesstraining #outsidegym  #miami #2020 #vision #mindset  #garycalder_fitness #scotland #lululemon #oncloud #nike
8 5 last month
Recovery run. ⁣

distance: 10.57km / 6.57 miles ⁣
time: 1h 1m 47s ⁣
temperature: 6 degrees ⁣

discomfort: ⁣

- tired legs ⁣
- left itb ⁣

overview: ⁣

ran out of bagels, rice cakes and coffee 😤 porridge doesn’t sit too well when running 🤢 ⁣

however, a very easy pace this morning, recovering from training this week. still not a bad pace, 6 1/2 miles and hour - i’ll take it.⁣

makes such a difference when the sun is out☀️😎 even though it’s still so cold 🥶 ⁣

#run #distance #dundee #10k #perthroad #sis #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #fitness #fitnesstraining #outsidegym #miami #2020 #vision #mindset #garycalder_fitness #scotland #lululemon #oncloud #nike
FUNDRAISING. ⁣
⁣
It worked out to be a great day! 😃🚲💨 ⁣
⁣
A huge thank you to everyone for their generosity and @tescoextra for allowing me to do a #fundraising event - all the pennies and pounds stacked, coming to a total of £377.64 (+ a 1975 Swiss Franc 😜🇨🇭) contributing towards a fantastic cause 👏 ⁣
⁣
4 weeks tomorrow until I run #themiamimarathon 🏃‍♂️💨⁣
⁣
If you would like to donate, my fundraising page is: ⁣
⁣
https://www.justgiving.com/fundraising/garycalder⁣
⁣
Any donation or contribution would be GREAT! ⁣
⁣
You can also follow my progress on Instagram with workouts I’m doing in preparation to the 26.2 mile run: ⁣
⁣
@garycalder_fitness ⁣
⁣
If you’re in and around Dundee, photos will be in the paper Monday I think - keep an eye out ✋👁👁🤚⁣
⁣
An awesome day - buzzing! 🕺 ⁣
⁣
#dundee #tesco #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #run #fundraising #fitness #fitnesstraining #outsidegym  #miami #2020 #vision #mindset #garycalder_fitness #scotland #lululemon #oncloud #nike
1 44 last month
Fundraising. ⁣

it worked out to be a great day! 😃🚲💨 ⁣

a huge thank you to everyone for their generosity and @tescoextra for allowing me to do a #fundraising event - all the pennies and pounds stacked, coming to a total of £377.64 (+ a 1975 swiss franc 😜🇨🇭) contributing towards a fantastic cause 👏 ⁣

4 weeks tomorrow until i run #themiamimarathon 🏃‍♂️💨⁣

if you would like to donate, my fundraising page is: ⁣

https://www.justgiving.com/fundraising/garycalder

any donation or contribution would be great! ⁣

you can also follow my progress on instagram with workouts i’m doing in preparation to the 26.2 mile run: ⁣

@garycalder_fitness

if you’re in and around dundee, photos will be in the paper monday i think - keep an eye out ✋👁👁🤚⁣

an awesome day - buzzing! 🕺 ⁣

#dundee #tesco #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #run #fundraising #fitness #fitnesstraining #outsidegym #miami #2020 #vision #mindset #garycalder_fitness #scotland #lululemon #oncloud #nike
FUNDRAISING. ⁣
⁣
It worked out to be a great day! 😃🚲💨 ⁣
⁣
A huge thank you to everyone for their generosity and @tescoextra for allowing me to do a #fundraising event - all the pennies and pounds stacked, coming to a total of £377.64 (+ a 1975 Swiss Franc 😜🇨🇭) contributing towards a fantastic cause 👏 ⁣
⁣
4 weeks tomorrow until I run #themiamimarathon 🏃‍♂️💨⁣
⁣
If you would like to donate, my fundraising page is: ⁣
⁣
https://www.justgiving.com/fundraising/garycalder⁣
⁣
Any donation or contribution would be GREAT! ⁣
⁣
You can also follow my progress on Instagram with workouts I’m doing in preparation to the 26.2 mile run: ⁣
⁣
@garycalder_fitness ⁣
⁣
If you’re in and around Dundee, photos will be in the paper Monday I think - keep an eye out ✋👁👁🤚⁣
⁣
An awesome day - buzzing! 🕺 ⁣
⁣
#dundee #tesco #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #run #fundraising #fitness #fitnesstraining #outsidegym  #miami #2020 #vision #mindset #garycalder_fitness #scotland #lululemon #oncloud #nike
2 21 last month
Fundraising. ⁣

it worked out to be a great day! 😃🚲💨 ⁣

a huge thank you to everyone for their generosity and @tescoextra for allowing me to do a #fundraising event - all the pennies and pounds stacked, coming to a total of £377.64 (+ a 1975 swiss franc 😜🇨🇭) contributing towards a fantastic cause 👏 ⁣

4 weeks tomorrow until i run #themiamimarathon 🏃‍♂️💨⁣

if you would like to donate, my fundraising page is: ⁣

https://www.justgiving.com/fundraising/garycalder

any donation or contribution would be great! ⁣

you can also follow my progress on instagram with workouts i’m doing in preparation to the 26.2 mile run: ⁣

@garycalder_fitness

if you’re in and around dundee, photos will be in the paper monday i think - keep an eye out ✋👁👁🤚⁣

an awesome day - buzzing! 🕺 ⁣

#dundee #tesco #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #run #fundraising #fitness #fitnesstraining #outsidegym #miami #2020 #vision #mindset #garycalder_fitness #scotland #lululemon #oncloud #nike
❤🎮 SUPER NINTENDO GIRL 🏋🏽‍♀️ All those works outs of the past year gave me a thigh gap and I ain't mad about it. Being consistent with daily workouts while dealing with the struggles and 24/7 pain my chronic illnes gives me is very challenging to say the least. But seeing the actual results is so SO rewarding to me. This progress is not only building me up physically but also mentally. Some people assume my illness magically dissapeared when they see the things I do nowadays or think that I may have over-reacted in the past. Nothing is less true. An invisible illness doesn't mean it isn't there. Well, I do have plenty of scars to show for but still my illness is not the kind that is generally being taken very seriously as it's so complex and still not very known. My life has never been the same since being misdiagnosed after an accident 10 years ago which caused me to develop permanent Dystrophy in the meantime, followed by many surgeries, morphine treatments (which I choose last year to never want to do again - If I say I'd rather deal with the pain than the side effects of being drugged out that should say enough) and dealing with a whacked up nerve and immune system but that being said, it was time to get life and happiness back into my own hands despite of that. Live (as close to) as how I want to live and look (as close to) as how I want to look. For me that will never come easy, it is an every day battle but...an every day battle worth fighting for 👊 I now know I am so much more than I gave myself credit for and I am excited to discover everything I can accomplish in this life and make things happen for myself no matter what. If any of you deal with something similair, NEVER stop believing in YOURSELF and if you can't do it one way, do it the other! ❤
9 89 last month
❤🎮 super nintendo girl 🏋🏽‍♀️ all those works outs of the past year gave me a thigh gap and i ain't mad about it. being consistent with daily workouts while dealing with the struggles and 24/7 pain my chronic illnes gives me is very challenging to say the least. but seeing the actual results is so so rewarding to me. this progress is not only building me up physically but also mentally. some people assume my illness magically dissapeared when they see the things i do nowadays or think that i may have over-reacted in the past. nothing is less true. an invisible illness doesn't mean it isn't there. well, i do have plenty of scars to show for but still my illness is not the kind that is generally being taken very seriously as it's so complex and still not very known. my life has never been the same since being misdiagnosed after an accident 10 years ago which caused me to develop permanent dystrophy in the meantime, followed by many surgeries, morphine treatments (which i choose last year to never want to do again - if i say i'd rather deal with the pain than the side effects of being drugged out that should say enough) and dealing with a whacked up nerve and immune system but that being said, it was time to get life and happiness back into my own hands despite of that. live (as close to) as how i want to live and look (as close to) as how i want to look. for me that will never come easy, it is an every day battle but...an every day battle worth fighting for 👊 i now know i am so much more than i gave myself credit for and i am excited to discover everything i can accomplish in this life and make things happen for myself no matter what. if any of you deal with something similair, never stop believing in yourself and if you can't do it one way, do it the other! ❤
George has been working really hard on sit to stand to try and help make his life more independent. Tonight, George nailed it and totally deserves to be proud of himself... #togetherwearestronger
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#swimlabinternational #families #cerebralpalsy #disabilityawareness #disabilityfamilies #supporteachother #strongertogether #landtraining #friends #swim #swimming #musculardystrophy #dystrophy #goals #improvinglives #musculardystrophyawareness #musculardystrophywarrior #proudcoach #achivinggoals #workhard #independent
0 26 last month
A NON-STOP 18-MILER. ⁣⁣
⁣⁣
Distance: 29.32km / 18.2 miles ⁣⁣
Time: 2h 59m 14s ⁣⁣
Temperature: 5 degrees ⁣⁣
⁣⁣
Discomfort: ⁣⁣
⁣⁣
- Overall Leg stiffness for the last 3-4 miles ⁣⁣
- Wind ⁣⁣
- Stiff neck with the wind? 😂 🤷🏼‍♂️⁣⁣
⁣⁣
Overview: ⁣⁣
⁣⁣
2020 off to a solid start with beating PB distance 🥳 💪 ⁣didn’t stop once! 🕺 🎉 ⁣⁣
⁣
Motivation vs discipline. ⁣⁣
⁣⁣
80%+ step away from their New Year resolutions within the first 6 weeks because they simply don’t know what they are trying to resolve - they feel an obligation to follow a dying trend. ⁣⁣
⁣⁣
Simply a strike of motivation within the transition of a day but once that wears off, discipline comes in heavy. ⁣⁣
⁣⁣
Discipline is where the FEAR is conquered but it takes effort, mindset, dedication, drive, energy and focus. ⁣⁣
⁣⁣
New year new me?⁣⁣
⁣⁣
Nah, new year same me - it shouldn’t take the change of day in a calander to get you to fulfil your dreams. ⁣⁣
⁣⁣
“Motivation gets you going, discipline keeps you growing” ⁣⁣
⁣⁣
😤 💪 ⁣⁣
⁣⁣
Follow my progress: @garycalder_fitness ⁣⁣
⁣⁣
#run #distance #dundee #cheeky18miler #taybridge #sisgel #scienceinsport #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #fitness #fitnesstraining #outsidegym  #miami #2020 #vision #mindset  #garycalder_fitness #scotland #lululemon #oncloud #nike
3 28 last month
A non-stop 18-miler. ⁣⁣
⁣⁣
distance: 29.32km / 18.2 miles ⁣⁣
time: 2h 59m 14s ⁣⁣
temperature: 5 degrees ⁣⁣
⁣⁣
discomfort: ⁣⁣
⁣⁣
- overall leg stiffness for the last 3-4 miles ⁣⁣
- wind ⁣⁣
- stiff neck with the wind? 😂 🤷🏼‍♂️⁣⁣
⁣⁣
overview: ⁣⁣
⁣⁣
2020 off to a solid start with beating pb distance 🥳 💪 ⁣didn’t stop once! 🕺 🎉 ⁣⁣

motivation vs discipline. ⁣⁣
⁣⁣
80%+ step away from their new year resolutions within the first 6 weeks because they simply don’t know what they are trying to resolve - they feel an obligation to follow a dying trend. ⁣⁣
⁣⁣
simply a strike of motivation within the transition of a day but once that wears off, discipline comes in heavy. ⁣⁣
⁣⁣
discipline is where the fear is conquered but it takes effort, mindset, dedication, drive, energy and focus. ⁣⁣
⁣⁣
new year new me?⁣⁣
⁣⁣
nah, new year same me - it shouldn’t take the change of day in a calander to get you to fulfil your dreams. ⁣⁣
⁣⁣
“motivation gets you going, discipline keeps you growing” ⁣⁣
⁣⁣
😤 💪 ⁣⁣
⁣⁣
follow my progress: @garycalder_fitness ⁣⁣
⁣⁣
#run #distance #dundee #cheeky18miler #taybridge #sisgel #scienceinsport #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #fitness #fitnesstraining #outsidegym #miami #2020 #vision #mindset #garycalder_fitness #scotland #lululemon #oncloud #nike
SPIN.⁣
⁣
Distance: n/a⁣
Time: 2h 00m 5s⁣
Temperature: Indoor⁣
⁣
Discomfort: ⁣
⁣
- None⁣
⁣
Overview: ⁣
⁣
50mph winds with “wet” rain - nae danger... 🤦‍♂️ ⁣
⁣
Hit the bike for a solid 2 hours to keep up with the duration 🚲 ⁣
⁣
Better weather tomorrow so gonna have to crack out a monster run 🏃‍♂️💨 ⁣
⁣
Follow my progress: @garycalder_fitness ⁣
⁣
#spin #indoorfitness #dundee #cheeky10miler  #dundee #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #fitness #fitnesstraining #outsidegym  #miami #2020 #vision #mindset  #garycalder_fitness #scotland #lululemon #oncloud #nike
2 15 last month
Spin.⁣

distance: n/a⁣
time: 2h 00m 5s⁣
temperature: indoor⁣

discomfort: ⁣

- none⁣

overview: ⁣

50mph winds with “wet” rain - nae danger... 🤦‍♂️ ⁣

hit the bike for a solid 2 hours to keep up with the duration 🚲 ⁣

better weather tomorrow so gonna have to c***k out a monster run 🏃‍♂️💨 ⁣

follow my progress: @garycalder_fitness

#spin #indoorfitness #dundee #cheeky10miler #dundee #fitfam #instafit #charity #musculardystrophy #dystrophy #marathontraining #marathon #running #fitness #fitnesstraining #outsidegym #miami #2020 #vision #mindset #garycalder_fitness #scotland #lululemon #oncloud #nike
...
انیمیشین فوق العاده تامل برانگیز که انسانیت رو تعقیب میکنه..
🍃🌸🍃
اگه کسی گره‌ای داره و تو راهش رو می‌دونی سکوت نکن! اگه دستت به جایی می‌رسه کاری کن
معجزه‌ی زندگی دیگران باش 💚🌱🌿☘🍀
🍃🍃
‏ گاهی وقتها میتونی با کوچکترین حرکت زندگی رو زیبا کنی! «دستتو از جيبت دربيار» ! 😍💚🍀
... #نوروماسکولار #ژنتیکی #معلولیت #دیستروفی_عضلانی#کمک#نیکوکاری#نوعدوستی
#انسان_دوستی #مهربانی#مهربان_باشیم #انسانیت #همیاری#همیار_باشیم #حس_خوب #لبخند_بسازیم #انجمن_قدم #خراسان_شمالی #بجنورد 
#muscular#sma #duchennemusculardystrophy #dystrophy#raredisease #genetics #disability #disabile #kindness
5 80 last month
...
انیمیشین فوق العاده تامل برانگیز که انسانیت رو تعقیب میکنه..
🍃🌸🍃
اگه کسی گره‌ای داره و تو راهش رو می‌دونی سکوت نکن! اگه دستت به جایی می‌رسه کاری کن
معجزه‌ی زندگی دیگران باش 💚🌱🌿☘🍀
🍃🍃
‏ گاهی وقتها میتونی با کوچکترین حرکت زندگی رو زیبا کنی! «دستتو از جيبت دربيار» ! 😍💚🍀
... #نوروماسکولار #ژنتیکی #معلولیت #دیستروفی_عضلانی#کمک#نیکوکاری#نوعدوستی #انسان_دوستی #مهربانی#مهربان_باشیم #انسانیت #همیاری#همیار_باشیم #حس_خوب #لبخند_بسازیم #انجمن_قدم #خراسان_شمالی #بجنورد
#muscular#sma #duchennemusculardystrophy #dystrophy#raredisease #genetics #disability #disabile #kindness
Habit 2: I kind of sort of meditate sometimes. But I haven’t really developed any sort of routine, despite having paid a yearly subscription to the headspace app. Over the next week I’m planning to meditate first thing in the morning (well maybe after making a cup of tea) every day for 10 minutes using the headspace app. Will it be a good way to start my day? Will I be able to stick to it? Will I just end up feeling frustrated & like I’ve failed something already by 7.15am?
#headspace #meditate #meditation #meditationapp #habit #newhabit #habits #myotonicdystrophy #myotonic ##dystrophy
1 1 last month
Habit 2: i kind of sort of meditate sometimes. but i haven’t really developed any sort of routine, despite having paid a yearly subscription to the headspace app. over the next week i’m planning to meditate first thing in the morning (well maybe after making a cup of tea) every day for 10 minutes using the headspace app. will it be a good way to start my day? will i be able to stick to it? will i just end up feeling frustrated & like i’ve failed something already by 7.15am?
#headspace #meditate #meditation #meditationapp #habit #newhabit #habits #myotonicdystrophy #myotonic ##dystrophy