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I had a appointment on Friday with the IBD nurse to check up on how I'm doing and there all so happy with my progress and everything is looking good 😁🤞🏻They said I'll need another (my 4th scope of the year😭) scope test to check everything because I'm still getting a few issues but there happy and I'm happy yaay 🙌🏻 I seen the stoma nurse too and she's gave me some thing to try with the bag to stop the leaks so hoping it will help. Finally my first positive hospital appointment since December 💪🏻 Hope everyone is doing well 💜
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 #crohns #crohnsdisease #chronicillness #ileostomy #inflammatoryboweldisease #invisableillness #ibd #spoonie #stoma #surgery #autoimmunedisease
18 780 17 hours ago
I had a appointment on friday with the ibd nurse to check up on how i'm doing and there all so happy with my progress and everything is looking good 😁🤞🏻they said i'll need another (my 4th scope of the year😭) scope test to check everything because i'm still getting a few issues but there happy and i'm happy yaay 🙌🏻 i seen the stoma nurse too and she's gave me some thing to try with the bag to stop the leaks so hoping it will help. finally my first positive hospital appointment since december 💪🏻 hope everyone is doing well 💜 . #crohns #crohnsdisease #chronicillness #ileostomy #inflammatoryboweldisease #invisableillness #ibd #spoonie #stoma #surgery #autoimmunedisease
I'm feeling good today ☺️. It's completely okay to be feeling yourself. Embrace the days you feel awesome. I got a facial, massage, and manicure this week. Enjoying being fresh faced and relaxing this weekend while I play puppy sitter to a couple extra fur children. This is the kind of shape I want to stay in all year long. That's the plan with my reverse diet after this show. It's completely possible I just have to actively use my improvement season instead of making it an off season.
23 1,159 Yesterday
I'm feeling good today ☺️. it's completely okay to be feeling yourself. embrace the days you feel awesome. i got a facial, massage, and manicure this week. enjoying being fresh faced and relaxing this weekend while i play puppy sitter to a couple extra fur children. this is the kind of shape i want to stay in all year long. that's the plan with my reverse diet after this show. it's completely possible i just have to actively use my improvement season instead of making it an off season.
My stoma was extremely calm last night and I decided to take a photo. This is as close as possible to how my body used to look before my ileostomy. Honestly, I don't think that I look all that different. Arguably, the most difficult aspect of having an ileostomy is maintaining a healthy level of confidence and security in your own body the way it is.
53 589 Yesterday
My stoma was extremely calm last night and i decided to take a photo. this is as close as possible to how my body used to look before my ileostomy. honestly, i don't think that i look all that different. arguably, the most difficult aspect of having an ileostomy is maintaining a healthy level of confidence and security in your own body the way it is. "i hope my clothes hide my bag." "please stay quiet during dinner." "what is he going to think when he sees my bag?" these kind of thoughts come up in my brain every day.... but these don't: "where is the nearest bathroom?" "these white p*****s are pretty, but i shouldn't buy them." "i hope no one can hear me in the bathroom." i still struggle with it here and there, but i haven't regretted my decision for a second. so many people think that getting an ileostomy somehow means you've lost the fight with ibd. but, for me, it's how i won. 💜 . . . #spoonie #spooniefamily #ibd #ibdfamily #ulcerativecolitis #crohns #jpouch #nocolonstillrollin #chronicpain #chronicillness #invisibleillness #autoimmunedisease #jpouch #ileostomy #stoma #ostomy #surgery #girlswithguts
July 23rd, 2016 to July 23rd, 2017. After three surgeries and lots of life lessons, I'm pumped to see how the rest of my summer goes. Thanks for going with me on this wild ride. 
#ibd #ostomy #ileostomy #crohns #nocolonstillrollin
3 101 15 hours ago
July 23rd, 2016 to july 23rd, 2017. after three surgeries and lots of life lessons, i'm pumped to see how the rest of my summer goes. thanks for going with me on this wild ride. #ibd #ostomy #ileostomy #crohns #nocolonstillrollin
Apparently cinnamon roll cheat meals make my most muscular facial expressions look like Roelly Winklaar's 🤷🏻‍♂️
14 172 6 hours ago
Apparently cinnamon roll cheat meals make my most muscular facial expressions look like roelly winklaar's 🤷🏻‍♂️
Just thought I'd use this video whilst I give everyone a little update how I'm doing... Any questions about the video, please ask anything! If I'm honest, I'm doing terrible. I've been in A TON of pain and today has been the worst yet. I haven't been sleeping well, I haven't been eating well and I've been feeling super down and miserable. I've emailed my IBD Nurse and asked her if there's any medication I can have, any chance I can be admitted to hospital or even be prescribed some Steroids (Prednisolone) or something because THATS how much pain I am in.. If you've been following me for a while, you'll know how much I absolutely HAAAATE steroids.. But I'm in so much pain that I literally couldn't care about anything except feeling better. I had a driving lesson today, which I had to cancel due to being on Tramadol and basically spent the morning crying in bed. I haven't felt this bad in a long long time.. The pain actually feels like the same pain I had back in October, when I had to have emergency surgery. I had a fistula that turned into a massive abscess, my intestine (and Stoma) went super infected and I had to have emergency surgery to refashion my bag Ed2... The pain feels like I have an abscess sitting behind my Stoma again.. So I told my nurse that so hopefully she'll be able to get me an apointment with my Gastro and hopefully an MRI scan or something to see how things are doing.. because I am doing absolutely terrible 😪
77 419 2 days ago
Just thought i'd use this video whilst i give everyone a little update how i'm doing... any questions about the video, please ask anything! if i'm honest, i'm doing terrible. i've been in a ton of pain and today has been the worst yet. i haven't been sleeping well, i haven't been eating well and i've been feeling super down and miserable. i've emailed my ibd nurse and asked her if there's any medication i can have, any chance i can be admitted to hospital or even be prescribed some steroids (prednisolone) or something because thats how much pain i am in.. if you've been following me for a while, you'll know how much i absolutely haaaate steroids.. but i'm in so much pain that i literally couldn't care about anything except feeling better. i had a driving lesson today, which i had to cancel due to being on tramadol and basically spent the morning crying in bed. i haven't felt this bad in a long long time.. the pain actually feels like the same pain i had back in october, when i had to have emergency surgery. i had a fistula that turned into a massive abscess, my intestine (and stoma) went super infected and i had to have emergency surgery to refashion my bag ed2... the pain feels like i have an abscess sitting behind my stoma again.. so i told my nurse that so hopefully she'll be able to get me an apointment with my gastro and hopefully an mri scan or something to see how things are doing.. because i am doing absolutely terrible 😪
My skin is bronzed, my southern accent is in full swing, and my heart is so full ❤️ Savannah, you treated this bachelorette and her favorites so well. Until next time Georgia 😘
5 143 12 hours ago
My skin is bronzed, my southern accent is in full swing, and my heart is so full ❤️ savannah, you treated this bachelorette and her favorites so well. until next time georgia 😘
It's a lazy//productive Sunday.. you know, when you're doing laundry and meal prep for the week in your pjs but resting on the couch every 15 minutes to watch Independence Day on E! 🙈😴📺💜
9 726 12 hours ago
It's a lazy//productive sunday.. you know, when you're doing laundry and meal prep for the week in your pjs but resting on the couch every 15 minutes to watch independence day on e! 🙈😴📺💜
#Repost @wongley (@get_repost)
・・・
Nails done did 💅💅💅💅
Thank you @ibdnailsa x @bliss_studiojhb ❤

#nailsdone #nailsdid #red #ibd #bliss #girls #love
0 0 4 minutes ago
#repost @wongley (@get_repost) ・・・ nails done did 💅💅💅💅 thank you @ibdnailsa x @bliss_studiojhb#nailsdone #nailsdid #red #ibd #bliss #girls #love
Receiving #remsima now 😊👌. Let's hope I won't get an allergic reaction from it. 
#ibd #ibdwarrior #crohns #crohnsdisease #inflammatoryboweldisease
0 1 5 minutes ago
Receiving #remsima now 😊👌. let's hope i won't get an allergic reaction from it. #ibd #ibdwarrior #crohns #crohnsdisease #inflammatoryboweldisease
以前レシピを載せた海南鶏飯(カオマンガイ)をまた作りました。
今回はスイートチリソースも作ってみました👩‍🔬
スイチリって意外と簡単に作れるのですね😮知らなかった!
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サラダのトマトは湯むきして、種とゼリーの部分は取り除き、漉して種とゼリーに分け、ゼリーはドレッシングに使いました🍅
ふだんは皮と種は残渣になるので除くけど、いっしょにゼリー部分も捨てるのは旨味があるのにもったいないなあと思っていた💭
でもこれで有効活用できますね。
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先週末のBBQはとってもたのしかったです。
ひさしぶりにあんなに肉食べました🍖
夫もちょっとだけ食べました👨
おなかはセーフだったようです🙆
でも、夫はほとんどの時間、あまりお肉を食べないのを周囲の人に不自然に思われないようにひたすら焼く係をやっていました🔥
えらい😭
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昨日の#晩ごはん
#海南鶏飯 (#カオマンガイ ) 皮なし鶏もも肉🐓
#みょうがの黒酢漬け
#トマトとバジルとゆで卵のパンサラダ 
#すりおろし野菜ドレッシング えごま油
#大根とカニカマのアジアンスープ
#潰瘍性大腸炎 #ibd #uc #低脂肪食 #低残渣食 #食事記録
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BBQの箸休め用に作った#タコのポテトサラダ ノンマヨネーズ🐙
0 3 8 minutes ago
以前レシピを載せた海南鶏飯(カオマンガイ)をまた作りました。 今回はスイートチリソースも作ってみました👩‍🔬 スイチリって意外と簡単に作れるのですね😮知らなかった! . サラダのトマトは湯むきして、種とゼリーの部分は取り除き、漉して種とゼリーに分け、ゼリーはドレッシングに使いました🍅 ふだんは皮と種は残渣になるので除くけど、いっしょにゼリー部分も捨てるのは旨味があるのにもったいないなあと思っていた💭 でもこれで有効活用できますね。 . 先週末のbbqはとってもたのしかったです。 ひさしぶりにあんなに肉食べました🍖 夫もちょっとだけ食べました👨 おなかはセーフだったようです🙆 でも、夫はほとんどの時間、あまりお肉を食べないのを周囲の人に不自然に思われないようにひたすら焼く係をやっていました🔥 えらい😭 . 昨日の#晩ごはん #海南鶏飯 (#カオマンガイ ) 皮なし鶏もも肉🐓 #みょうがの黒酢漬け #トマトとバジルとゆで卵のパンサラダ #すりおろし野菜ドレッシング えごま油 #大根とカニカマのアジアンスープ #潰瘍性大腸炎 #ibd #uc #低脂肪食 #低残渣食 #食事記録 . bbqの箸休め用に作った#タコのポテトサラダ ノンマヨネーズ🐙
Mobile nails. New colours just in. 
#nailart #ibd #juliet #headintheclouds #mobilenails
1 3 9 minutes ago
Mobile nails. new colours just in. #nailart #ibd #juliet #headintheclouds #mobilenails
***
ざっす💓ざっす💓あざーーーっす😚💓
食器選んでくれるとこも
買う店も好みもわかってて
さすが、友だな 😎😎😎!
改めて開いてにやにやしてるよ💘
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最近Franc francのもの頂くこと多くて
ほんとありがたいし嬉しすぎて💘
かわいいしやる気もでそうだし
食器たち早く使いたいのに
使えないもどかしさ😂
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料理のやる気スイッチどこ、、、🤐
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#きまぐれきろく #ibd #cd #uc #クローン病 #わたしのクローン食 #低脂肪食 #ごはんのきろく #きろく #Francfranc #ディズニー #食器
1 13 24 minutes ago
*** ざっす💓ざっす💓あざーーーっす😚💓 食器選んでくれるとこも 買う店も好みもわかってて さすが、友だな 😎😎😎! 改めて開いてにやにやしてるよ💘 . 最近franc francのもの頂くこと多くて ほんとありがたいし嬉しすぎて💘 かわいいしやる気もでそうだし 食器たち早く使いたいのに 使えないもどかしさ😂 . 料理のやる気スイッチどこ、、、🤐 . #きまぐれきろく #ibd #cd #uc #クローン病 #わたしのクローン食 #低脂肪食 #ごはんのきろく #きろく #francfranc #ディズニー #食器
This week's video topic is IBD tattoos start sending
Don't forget to like & subscribe to YouTube channel (link to our last video in our bio)

All Questions ,Events, pictures and videos please send via DM only  #flareup #crohnssucks #crohns  #colitis #remicade #ibdsucks  #prednisone  #warriors  #entyvio  #crohnsandcolitis  #flaringup #feedingtube  #crohnsdisease #ibd #ibdsucks #ibdawareness#crohnsawareness#stoma#vedolizumab#spoonie#crohnswarrior#crohnsprobs#ngtube#autoimmune#crohnsandcolitisawareness#crohnsfighter#autoimmunedisease#nutrition#crohnstattoo #crohnstattoos #colitistattoo
1 3 26 minutes ago
This week's video topic is ibd tattoos start sending don't forget to like & subscribe to youtube channel (link to our last video in our bio) all questions ,events, pictures and videos please send via dm only #flareup #crohnssucks #crohns #colitis #remicade #ibdsucks #prednisone #warriors #entyvio #crohnsandcolitis #flaringup #feedingtube #crohnsdisease #ibd #ibdsucks #ibdawareness#crohnsawareness#stoma#vedolizumab#spoonie#crohnswarrior#crohnsprobs#ngtube#autoimmune#crohnsandcolitisawareness#crohnsfighter#autoimmunedisease#nutrition#crohnstattoo #crohnstattoos #colitistattoo
This week's video topic is IBD tattoos start sending
Don't forget to like & subscribe to YouTube channel (link to our last video in our bio)

All Questions ,Events, pictures and videos please send via DM only  #flareup #crohnssucks #crohns  #colitis #remicade #ibdsucks  #prednisone  #warriors  #entyvio  #crohnsandcolitis  #flaringup #feedingtube  #crohnsdisease #ibd #ibdsucks #ibdawareness#crohnsawareness#stoma#vedolizumab#spoonie#crohnswarrior#crohnsprobs#ngtube#autoimmune#crohnsandcolitisawareness#crohnsfighter#autoimmunedisease#nutrition#crohnstattoo #crohnstattoos #colitistattoo
0 4 27 minutes ago
This week's video topic is ibd tattoos start sending don't forget to like & subscribe to youtube channel (link to our last video in our bio) all questions ,events, pictures and videos please send via dm only #flareup #crohnssucks #crohns #colitis #remicade #ibdsucks #prednisone #warriors #entyvio #crohnsandcolitis #flaringup #feedingtube #crohnsdisease #ibd #ibdsucks #ibdawareness#crohnsawareness#stoma#vedolizumab#spoonie#crohnswarrior#crohnsprobs#ngtube#autoimmune#crohnsandcolitisawareness#crohnsfighter#autoimmunedisease#nutrition#crohnstattoo #crohnstattoos #colitistattoo
🌸Друзья! Приглашаем Вас окунуться в удивительный мир nail-красоты💅 на ДНЕ ОТКРЫТЫХ ДВЕРЕЙ 27 ИЮЛЯ В 16:00!🙂🌸
_____________________
Вы сможете:
🔸 Узнать о программах обучения и методиках преподавания.
🔸 Протестировать на себе бесплатные SPA-процедуры.
🔸 Получить обзорную ознакомительную экскурсию по нашему  супермаркету,в котором огромное количество всей необходимой продукции не только для сотрудников beauty-индустрии,но и для домашнего ухода за собственной красотой.
🔸 Увидеть наши учебные классы, материалы и препараты для маникюра, педикюра и моделирования ногтей.
🔸 Лично познакомиться с каждым преподавателем Учебного Центра «Виктори».
❗Вам точно захочется стать настоящим мастером в этом красивом деле.❗Мы вместе выберем подходящий курс и график обучения специально для Вас.
❗❗❗❗❗ВНИМАНИЕ!Всем посетителям Дня Открытых Дверей мы дарим возможность пройти курсы Мастер-универсал и Мастер-универсал(MINI) СО СКИДКОЙ 10% ❗❗❗❗❗❗📢📢📢📢📢 🆓МЕРОПРИЯТИЕ  БЕСПЛАТНОЕ И ДЛЯ ВСЕХ ЖЕЛАЮЩИХ!🆓
☎️ЗАПИСЬ ПО ТЕЛЕФОНУ: 311-00-17.

#виктори #мастерманикюра #мастерпедикюра #ногтевойсервис #деньоткрытыхдверей#ногти #маникюр #педикюр #эпиляция #скидканавсё #акция #гельлак #ibd #ezflow #gena #gigi #seche #chinaglaze #supernail #salonperfect #bodydrench #наращиваниересниц #салонкрасоты #профессиональнаякосметика #наращиваниеногтей #уходзаруками #спаманикюр #спапедикюр #курсыманикюра #курсыпедикюра
0 9 37 minutes ago
🌸Друзья! Приглашаем Вас окунуться в удивительный мир nail-красоты💅 на ДНЕ ОТКРЫТЫХ ДВЕРЕЙ 27 ИЮЛЯ В 16:00!🙂🌸 _____________________ Вы сможете: 🔸 Узнать о программах обучения и методиках преподавания. 🔸 Протестировать на себе бесплатные spa-процедуры. 🔸 Получить обзорную ознакомительную экскурсию по нашему  супермаркету,в котором огромное количество всей необходимой продукции не только для сотрудников beauty-индустрии,но и для домашнего ухода за собственной красотой. 🔸 Увидеть наши учебные классы, материалы и препараты для маникюра, педикюра и моделирования ногтей. 🔸 Лично познакомиться с каждым преподавателем Учебного Центра «Виктори». ❗Вам точно захочется стать настоящим мастером в этом красивом деле.❗Мы вместе выберем подходящий курс и график обучения специально для Вас. ❗❗❗❗❗ВНИМАНИЕ!Всем посетителям Дня Открытых Дверей мы дарим возможность пройти курсы Мастер-универсал и Мастер-универсал(mini) СО СКИДКОЙ 10% ❗❗❗❗❗❗📢📢📢📢📢 🆓МЕРОПРИЯТИЕ  БЕСПЛАТНОЕ И ДЛЯ ВСЕХ ЖЕЛАЮЩИХ!🆓 ☎️ЗАПИСЬ ПО ТЕЛЕФОНУ: 311-00-17. #виктори #мастерманикюра #мастерпедикюра #ногтевойсервис #деньоткрытыхдверей#ногти #маникюр #педикюр #эпиляция #скидканавсё #акция #гельлак #ibd #ezflow #gena #gigi #seche #chinaglaze #supernail #salonperfect #bodydrench #наращиваниересниц #салонкрасоты #профессиональнаякосметика #наращиваниеногтей #уходзаруками #спаманикюр #спапедикюр #курсыманикюра #курсыпедикюра
Всем отличного понедельника! Когда ну очень хочется на лазурный берег - .ibd. JustGel Polish #JustMenCapri (19400/176) на ногтях в помощь! Работа @antonovaelena_nail 👉 Приобрести оттенки гель-лаков .ibd. можно здесь: @victoryshop_ru / @victoryco.ru 👈

#ibdjustgel #ibd #ibdроссия #notd #гелевыйлак #шеллак #ногти #дизайнногтей #шилак #nails2inspire #нейлмастер #девушки #красота #инстаграм #nails #nailstagram #shellac #nailsoftheday #nailsart #nailsdesign #nailstyle #маникюр #маникюрныйинстаграм #маникюрдизайн #маникюрдня #инстаманикюр #ногтики #ногтидня
0 18 41 minutes ago
Всем отличного понедельника! Когда ну очень хочется на лазурный берег - .ibd. justgel polish #justmencapri (19400/176) на ногтях в помощь! Работа @antonovaelena_nail 👉 Приобрести оттенки гель-лаков .ibd. можно здесь: @victoryshop_ru / @victoryco.ru 👈 #ibdjustgel #ibd #ibdроссия #notd #гелевыйлак #шеллак #ногти #дизайнногтей #шилак #nails2inspire #нейлмастер #девушки #красота #инстаграм #nails #nailstagram #shellac #nailsoftheday #nailsart #nailsdesign #nailstyle #маникюр #маникюрныйинстаграм #маникюрдизайн #маникюрдня #инстаманикюр #ногтики #ногтидня
My
0 11 44 minutes ago
My "breaking an unplanned 23hr fast" soup: rosemary roasted kent pumpkin, carrot and parsnip added to pan of sautéed leek greens and a couple of cups of freshly made chicken broth #aip #autoimmuneprotocol #autoimmunepaleo #paleoaip #paleo #morevegetablesthanavegetarian #veggiesateverymeal #aipsoup #grainfree #dairyfree #bonebroth #guthealth #healyourgut #rheumatoidarthritis #ibd #psoriasis #howiaip
4 34 45 minutes ago
"i don't need an inspirational quote, i need coffee 🤓☕️" goodmorning lovely sunshines 😘 i put on my goldfish shirt, eat some breakfast with some coffee and put a smile on my face, because i have to get to my job and i won't be able to travel for the rest of the year ☹️, but i'm gonna make the best of the rest of this year 🙌🏽😬 positive vibes only 😌
Normal face 👩🏻 vs Moon face 🌝, the photo on the left is me a few weeks ago 9 months post surgery and completely medication free the photo on the right is me in August of last year completely steroid dependent I couldn't go below 25mg with out starting a rapid decline, this is the longest Iv been without needing to be on prednisone for 3 years 🙌🏻 and my body and mind is rejoicing .
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#ulcerativecolitis #ibd #ileostomy #crohnsandcolitis #stoma #ostomy #ostomate
0 3 47 minutes ago
Normal face 👩🏻 vs moon face 🌝, the photo on the left is me a few weeks ago 9 months post surgery and completely medication free the photo on the right is me in august of last year completely steroid dependent i couldn't go below 25mg with out starting a rapid decline, this is the longest iv been without needing to be on prednisone for 3 years 🙌🏻 and my body and mind is rejoicing . . . . . . . . . . . . . . . . . . . . . . #ulcerativecolitis #ibd #ileostomy #crohnsandcolitis #stoma #ostomy #ostomate
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お久しぶりです。

今更ながら7/3の検査結果。
やっぱり、ステロイドを5mg(1錠)にすると具合悪い…。
吐き気、倦怠感、下痢。プラス最近は毎日発熱中~。
日によって気分いい時もあるけど、ほぼほぼ寝てます…。 とりあえず、7/3に先生と話して、ステラーラ導入することになりました。
アメリカでは3年ほど使われているらしいけど、日本ではまだ実績なし。だからアメリカと合わせても、3年先のデータはわからないという不安…

しかもまだうちの病院ではシステムが構築されてないみたい。どの病院も同じなのかな?秋口くらいに開始?でも、今の状況が辛すぎて8/3に早めに投予してもらうようにしました…。 7/31に最終的に検査して問題なければ8/3に点滴。

レミケ、ヒュミラとは違うアプローチ方法らしいけど。さてさてどうなるのかしら。

#クローン病 #通院 #病院 #ステラーラ#新薬
#血液検査 #血液検査結果 #炎症反応 #悪い 
#bloodtest #bloodtestresults #blood
#hospitall #sick #crohnsdisease #crohn #crohns #crohnsfighter #ibd
1 9 54 minutes ago
▶ お久しぶりです。 今更ながら7/3の検査結果。 やっぱり、ステロイドを5mg(1錠)にすると具合悪い…。 吐き気、倦怠感、下痢。プラス最近は毎日発熱中~。 日によって気分いい時もあるけど、ほぼほぼ寝てます…。 とりあえず、7/3に先生と話して、ステラーラ導入することになりました。 アメリカでは3年ほど使われているらしいけど、日本ではまだ実績なし。だからアメリカと合わせても、3年先のデータはわからないという不安… しかもまだうちの病院ではシステムが構築されてないみたい。どの病院も同じなのかな?秋口くらいに開始?でも、今の状況が辛すぎて8/3に早めに投予してもらうようにしました…。 7/31に最終的に検査して問題なければ8/3に点滴。 レミケ、ヒュミラとは違うアプローチ方法らしいけど。さてさてどうなるのかしら。 #クローン病 #通院 #病院 #ステラーラ#新薬 #血液検査 #血液検査結果 #炎症反応 #悪い #bloodtest #bloodtestresults #blood #hospitall #sick #crohnsdisease #crohn #crohns #crohnsfighter #ibd