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It's IBD Awareness Day!!!
Sometimes things get out of control. My stomach is a little monster that I just have to learn to live with.  The one thing I can control is my mindset... I have to believe that things always get better. #ibdawarenessday #ulcerativecolitis #crohnsdisease
9 94 May 2015
It's ibd awareness day!!! sometimes things get out of control. my stomach is a little monster that i just have to learn to live with. the one thing i can control is my mindset... i have to believe that things always get better. #ibdawarenessday #ulcerativecolitis #crohnsdisease
It's #IBDAwarenessDay today so I'm reposting this photo of my last Remicade infusion. I was diagnosed with Ulcerative Colitis in 2005. For many years my illness was pretty in control, my medication (4pills 3xs daily) kept things in check. Besides a random stress induced flare up every once in a while I felt as normal as someone can with a chronic illness. When I got pregnant I was worried about how my body would react to carrying twins and thankfully all those crazy pregnancy hormones kept me feeling great. Then I had my girls and things went to shit, literally. Over the last year I've been on a real roller coaster. I had to go on steroids for months that caused a lot of hair loss, tooth sensitivity, insomnia and caused me to pack on a solid 25 pounds. I've had endless moments of not wanting to or being able to leave the house because I wasn't sure I would have enough time to get to the bathroom or was worried I couldn't be guaranteed access to a bathroom when I needed one. And of course I've been on a whole host of new medications. The cocktail I'm on now, 3 pills 1xs a day and an infusion every 8 or so weeks seems to be working so far. Fingers crossed that stays true. Bathroom habits and pain aren't things people often talk about and because of that I think a lot of us with IBD sort of suffer in silence and try and just
2 27 May 2017
It's #ibdawarenessday today so i'm reposting this photo of my last remicade infusion. i was diagnosed with ulcerative colitis in 2005. for many years my illness was pretty in control, my medication (4pills 3xs daily) kept things in check. besides a random stress induced flare up every once in a while i felt as normal as someone can with a chronic illness. when i got pregnant i was worried about how my body would react to carrying twins and thankfully all those crazy pregnancy hormones kept me feeling great. then i had my girls and things went to shit, literally. over the last year i've been on a real roller coaster. i had to go on steroids for months that caused a lot of hair loss, tooth sensitivity, insomnia and caused me to pack on a solid 25 pounds. i've had endless moments of not wanting to or being able to leave the house because i wasn't sure i would have enough time to get to the bathroom or was worried i couldn't be guaranteed access to a bathroom when i needed one. and of course i've been on a whole host of new medications. the cocktail i'm on now, 3 pills 1xs a day and an infusion every 8 or so weeks seems to be working so far. fingers crossed that stays true. bathroom habits and pain aren't things people often talk about and because of that i think a lot of us with ibd sort of suffer in silence and try and just "be normal" today i'm sharing all this because it's not something i'm ashamed of, it's something i live with and deal with, but it doesn't embarrass me, it's just one complicated piece of this life i'm living.
Leia going off to work in her purple IBD awareness T-shirt 👕 #daughter #powerfulinpurple #ibdawarenessday #crohnsandcolitis
2 27 May 2015
Leia going off to work in her purple ibd awareness t-shirt 👕 #daughter #powerfulinpurple #ibdawarenessday #crohnsandcolitis
#IBDAwarenessDay
0 19 May 2015
How fitting that Humira Friday falls on #IBDawarenessday
0 36 May 2017
How fitting that humira friday falls on #ibdawarenessday
#näkymätönsairaus: viikkoannos. #IBDfi #ibdawarenessday
2 11 May 2016
#näkymätönsairaus: viikkoannos. #ibdfi #ibdawarenessday
Inflammatory bowel diseases like Crohn’s and Colitis are no joke. Imagine being in constant pain, having to work your social schedule around bouts of diarrhea and discomfort...In today's piece, Mayim interviews three friends who are living with #IBD. #IBDAwarenessDay (link in bio)
14 276 May 2017
Inflammatory b***l diseases like crohn’s and colitis are no joke. imagine being in constant pain, having to work your social schedule around bouts of diarrhea and discomfort...in today's piece, mayim interviews three friends who are living with #ibd. #ibdawarenessday (link in bio)
IBD can result in surgery if the case is severe enough. There's many different kinds of surgery a person can have to help things, such as getting a section of badly diseased small intestine removed. Another type of surgery is having an Ostomy bag. I have an ileostomy bag and in my case I had all my large intestine surgically removed, my rectum removed and part of my small intestine pulled out through my abdomen. I wear this bag over it to collect the output. Basically, I have no butt and poop into that bag on my stomach 😂 This has given me a much better quality of life! Although I'm not cured or personally not healthier in anyway, it has improved my life amazingly! For others after having surgery, their symptoms drastically reduced and some no longer have to take any medication!
58 1,249 May 2017
Ibd can result in surgery if the case is severe enough. there's many different kinds of surgery a person can have to help things, such as getting a section of badly diseased small intestine removed. another type of surgery is having an ostomy bag. i have an ileostomy bag and in my case i had all my large intestine surgically removed, my r****m removed and part of my small intestine pulled out through my abdomen. i wear this bag over it to collect the output. basically, i have no b**t and poop into that bag on my stomach 😂 this has given me a much better quality of life! although i'm not cured or personally not healthier in anyway, it has improved my life amazingly! for others after having surgery, their symptoms drastically reduced and some no longer have to take any medication!
Imagine having disabling symptoms but nobody believes you. Imagine that on top of finding it embarrassing to discuss those symptoms like diarrhea, blood in stools, tummy pains and anxiety you are told it's bcz of stress. IBD patients look normal from the outside but they suffer frequent debilitating symptoms that can significantly impact their daily life. Let's be aware of IBD. #ibdawarenessday #worldibdday #colitis #crohnsdisease #ibd #chronicillness
0 14 May 2017
Imagine having disabling symptoms but nobody believes you. imagine that on top of finding it embarrassing to discuss those symptoms like diarrhea, blood in stools, tummy pains and anxiety you are told it's bcz of stress. ibd patients look normal from the outside but they suffer frequent debilitating symptoms that can significantly impact their daily life. let's be aware of ibd. #ibdawarenessday #worldibdday #colitis #crohnsdisease #ibd #chronicillness
Show me your belly!! #gwgflashmob Help me raise awareness for IBD!! #crohnswarrior #girlswithguts #ileostomy #bag #stomasteve #ibdawarenessday
2 137 May 2017
Show me your belly!! #gwgflashmob help me raise awareness for ibd!! #crohnswarrior #girlswithguts #ileostomy #bag #stomasteve #ibdawarenessday
It's #IBDAwarenessDay today so I'm reposting this photo of my last Remicade infusion. I was diagnosed with Ulcerative Colitis in 2005. For many years my illness was pretty in control, my medication (4pills 3xs daily) kept things in check. Besides a random stress induced flare up every once in a while I felt as normal as someone can with a chronic illness. When I got pregnant I was worried about how my body would react to carrying twins and thankfully all those crazy pregnancy hormones kept me feeling great. Then I had my girls and things went to shit, literally. Over the last year I've been on a real roller coaster. I had to go on steroids for months that caused a lot of hair loss, tooth sensitivity, insomnia and caused me to pack on a solid 25 pounds. I've had endless moments of not wanting to or being able to leave the house because I wasn't sure I would have enough time to get to the bathroom or was worried I couldn't be guaranteed access to a bathroom when I needed one. And of course I've been on a whole host of new medications. The cocktail I'm on now, 3 pills 1xs a day and an infusion every 8 or so weeks seems to be working so far. Fingers crossed that stays true. Bathroom habits and pain aren't things people often talk about and because of that I think a lot of us with IBD sort of suffer in silence and try and just
2 27 May 2017
It's #ibdawarenessday today so i'm reposting this photo of my last remicade infusion. i was diagnosed with ulcerative colitis in 2005. for many years my illness was pretty in control, my medication (4pills 3xs daily) kept things in check. besides a random stress induced flare up every once in a while i felt as normal as someone can with a chronic illness. when i got pregnant i was worried about how my body would react to carrying twins and thankfully all those crazy pregnancy hormones kept me feeling great. then i had my girls and things went to shit, literally. over the last year i've been on a real roller coaster. i had to go on steroids for months that caused a lot of hair loss, tooth sensitivity, insomnia and caused me to pack on a solid 25 pounds. i've had endless moments of not wanting to or being able to leave the house because i wasn't sure i would have enough time to get to the bathroom or was worried i couldn't be guaranteed access to a bathroom when i needed one. and of course i've been on a whole host of new medications. the cocktail i'm on now, 3 pills 1xs a day and an infusion every 8 or so weeks seems to be working so far. fingers crossed that stays true. bathroom habits and pain aren't things people often talk about and because of that i think a lot of us with ibd sort of suffer in silence and try and just "be normal" today i'm sharing all this because it's not something i'm ashamed of, it's something i live with and deal with, but it doesn't embarrass me, it's just one complicated piece of this life i'm living.
How fitting that Humira Friday falls on #IBDawarenessday
0 36 May 2017
How fitting that humira friday falls on #ibdawarenessday
Wearing our purple for international #ibdawarenessday #crohns&colitis #letmeseeyourpurple #crohnie #chronicbadass
0 10 May 2017
Wearing our purple for international #ibdawarenessday #crohns&colitis #letmeseeyourpurple #crohnie #chronicbadass
It's #IBDawarenessday & in honor of it I thought I would show you guys how it changes your body physically in more ways than you can imagine. These photos were taken less than 2 months apart. The #moonface is real. Luckily I'm down to 1 pill of #prednisone so hopefully I start getting back to my old self. (Also my best friend is a babe). I wrote a blog post also in honor of today ✌#ibd #ibdwarrior #steroidssuck #ulcerativecolitis #colitis #spoonie #chronicillness
0 61 May 2017
It's #ibdawarenessday & in honor of it i thought i would show you guys how it changes your body physically in more ways than you can imagine. these photos were taken less than 2 months apart. the #moonface is real. luckily i'm down to 1 pill of #prednisone so hopefully i start getting back to my old self. (also my best friend is a babe). i wrote a blog post also in honor of today ✌#ibd #ibdwarrior #steroidssuck #ulcerativecolitis #colitis #spoonie #chronicillness
IBD can result in surgery if the case is severe enough. There's many different kinds of surgery a person can have to help things, such as getting a section of badly diseased small intestine removed. Another type of surgery is having an Ostomy bag. I have an ileostomy bag and in my case I had all my large intestine surgically removed, my rectum removed and part of my small intestine pulled out through my abdomen. I wear this bag over it to collect the output. Basically, I have no butt and poop into that bag on my stomach 😂 This has given me a much better quality of life! Although I'm not cured or personally not healthier in anyway, it has improved my life amazingly! For others after having surgery, their symptoms drastically reduced and some no longer have to take any medication!
58 1,249 May 2017
Ibd can result in surgery if the case is severe enough. there's many different kinds of surgery a person can have to help things, such as getting a section of badly diseased small intestine removed. another type of surgery is having an ostomy bag. i have an ileostomy bag and in my case i had all my large intestine surgically removed, my r****m removed and part of my small intestine pulled out through my abdomen. i wear this bag over it to collect the output. basically, i have no b**t and poop into that bag on my stomach 😂 this has given me a much better quality of life! although i'm not cured or personally not healthier in anyway, it has improved my life amazingly! for others after having surgery, their symptoms drastically reduced and some no longer have to take any medication!
Today is World IBD Day, it's a day to raise awareness & to celebrate how far we've all come on this journey together. There are 2 main types of IBD, they are Crohn's Disease & Ulcerative Colitis. I have Crohn's Disease and the BIGGEST thing I want to raise awareness of is that IBD isn't a 'pooping disease.' Yes, one of the main symptoms and biggest problem is having to use the toilet urgently and multiple times a day.. but it's much much more than that! It's excruciating stomach pain, joint pain, mouth ulcers, weight loss, malnourishment, muscle weakness, major fatigue and MANY more. Dealing with a chronic illness also gets accompanied by Mental Health issues. It can cause you to lose friends, lose your social life, lose your job/leave education and that can make you feel low. I've had people ask me what Crohn's Disease is and then other people answer for me saying it's a 'shitting disease.' And it's honestly much much more than that.. IBD can't exactly kill you, but the complications from the illness certainly can be dangerous and super life threatening! There is no cure for IBD as of yet.. But hopefully one day there will be!
19 566 May 2017
Today is world ibd day, it's a day to raise awareness & to celebrate how far we've all come on this journey together. there are 2 main types of ibd, they are crohn's disease & ulcerative colitis. i have crohn's disease and the biggest thing i want to raise awareness of is that ibd isn't a 'pooping disease.' yes, one of the main symptoms and biggest problem is having to use the toilet urgently and multiple times a day.. but it's much much more than that! it's excruciating stomach pain, joint pain, mouth ulcers, weight loss, malnourishment, muscle weakness, major fatigue and many more. dealing with a chronic illness also gets accompanied by mental health issues. it can cause you to lose friends, lose your social life, lose your job/leave education and that can make you feel low. i've had people ask me what crohn's disease is and then other people answer for me saying it's a 'shitting disease.' and it's honestly much much more than that.. ibd can't exactly k**l you, but the complications from the illness certainly can be dangerous and super life threatening! there is no cure for ibd as of yet.. but hopefully one day there will be!